Talk:Sirenomelia

I was just reading up on Sirenomelia and apparently, there are three known survivors of Sirenomelia. I searched the internet and was unable to find out who the other person is (not including tiffany yorks, and Milagaros Cerrón).

This statement of three survivors was found and verified in many esteemed sources, to include a few MSNBC and WOW.

The third survivor is supposedly "living somewhere in Asia." Guthrie 14:20, Jun 3, 2005 (UTC)

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Perhaps this topic should go under "mermaid". It's a small article to begin with... What do you wikipedians think? —DaemonDivinus 04:37, 2 August 2005 (UTC)

I don't think it's a good idea. This one is a serious topic. How would you feel if you had a rare illness and its Wikipedia article were slumped together with that of some mythological creature? -- Alensha 22:15, 13 September 2005 (UTC)

I concur. Bubbleboys 23:26, 13 September 2005 (UTC)

"Caudal regression syndrome" under the See Also section redirects to this page. I suggest it be removed until an article is written.

Might be better to remove the redirect from CRS to this page. Jeffr 17:38, 12 April 2006 (UTC)

FWIW my medical dictionary has "caudal regression syndrome" also known as "caudal dysplasia syndrome" also known as "sacral agenesis."--209.7.195.158 21:00, 3 October 2006 (UTC)

They are, I am fairly sure, all the same syndrome.Didymus

There was just a case in China

Boy with mermaid's syndrome abandoned

I think Milagros Ceran's case warrants its own page, because survival is so rare, and each case so different, that each one is a unique story that ought to be told separately. ChristinaDunigan 05:44, 10 December 2006 (UTC)

Preparate Picture

I'm not sure that the pickled baby picture is necessary, as we have another picture of a live baby and do not need two pictures - the pickled picture does not add anything to the article, but does distract people from the condition itself.

I'm not sure whether it distracts from the condition itself or not but removing it is probably advisable. Normally pathology museums (in the UK at least) are NOT open to the public but only to those with a specific need to visit them, either for education or research. 86.146.166.223 02:31, 17 January 2007 (UTC)MFO

Citation for syringomyelia being associated with maternal diabetes

I also learned in my pediatric residency that syringomyelia (also called caudal regression syndrome) is associated with maternal diabetes. In other words, if the mother has diabetes while she is pregnant, most likely, the baby will still be normal, but this is one of the rare congenital defects that may arise in this condition. I have never seen it. I learned this from a manual for pediatric residents put forth by the Neonatology Department at Baylor Children's Hospital. I have not been able to find this association in any textbook or description of this condition since then. So, for what it's worth, this association is mentioned in one resident manual from Baylor--I would be interested if anyone else found a more reliable source as a reference. Has anyone seen a case associated with maternal diabetes?

Also, ordinary gestational diabetes which is well controlled should not give you congenital defects in the offspring, much less this one. This sort of defect is usually associated with a mother with severe uncontrolled diabetes mellitus which she had before pregnancy, aside from the other cases which come sporadically or due to some other unknown genetic cause.Beezer137 22:18, 21 January 2007 (UTC)Beezer137

I Have CRS

It is not always "mermaid" like, I was born with two legs. They should definitely put up an article about the other types of caudal regression syndrome instead of this redirection. I have two legs, no motor activity from the knee down, limited flexibility of ankles & toes, missing sacrum & coccyx (sacral agenesis), etc.

Dinosaur bones 07:38, 4 February 2007 (UTC)

Agree with Dinasaur bones

My daughter has CRS...she has some of the problems but certainly has nothing like the extreme Sienomelia symptoms. In fact, Sienomelia was formerly considered an extreme type of CRS, but is now separately classified. It isn't approprial for 'Caudal Regression Syndrome' to redirect to this disorder. After I made a quick CRS page I realized there was a page for sacral agenesis...I will link them but I think the articles might be merged, but CRS is the more commonly used term so I think they should be merged under that name. —The preceding unsigned comment was added by Dantesothoth (talk • contribs) 01:59, 7 April 2007 (UTC).

changed it a little

Hi^^ i changed "disorder" at the beginning to "congential deformity" because it's more specific. i also provided a link. —The preceding unsigned comment was added by OtakuNOVAkun (talk • contribs) 05:00, 25 April 2007 (UTC).

VACTERL association

My daughter, Rebecca Nicole Miller, was stillborn February 18, 2002. Before her birth, we were told that she had Potter syndrome (aka Renal agenesis). After she was born, the doctors determined that she had Sirenomelia and Goldenhar Syndrome. They mentioned a connection to VACTERL association.

Millers2000 23:10, 30 May 2007 (UTC)

Conflicting numbers? Just use both?

One page says 1 in 70,000 another says 1 in 100,000. This isn't all that different given the difficulty of calculating such a thing in the first place. Why not just mention both references in both articles? Zaphraud 07:16, 12 July 2007 (UTC)

the reference says: "...with cyclopia or sirenomelia are born at an approximate rate of 1 in 100,000 births..." hence this page is incorrect, and the other is correct.

Third Survivor - Kennebunkport

I'm not sure about a survivor in Asia, but the reason I looked up this page in Wikipedia today was because of an article in my local paper about Shiloh Pepin, an 8 year old survivor in Kennebunkport, ME. Here's the link to the article: http://www.seacoastonline.com/apps/pbcs.dll/article?AID=/20070802/NEWS/708020394 140.233.11.91 19:11, 2 August 2007 (UTC)

I added her today. Corto 22:44, 2 August 2007 (UTC)