Lumia Foundation
| Lumia Foundation
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|---|---|
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| legal form | Legal foundation under civil law |
| founding | 2000 |
| Seat | Hanover |
| Website | www.lumiastiftung.de |
The Lumia Foundation is made in Germany for families in which a child, adolescent or young adult has suffered a severe brain injury and in a state of coma vigil is or a subsequent stage of development. Other terms are apallic syndrome, minimal state of consciousness, vegetative status, coma vigile, unresponsive wakefulness syndrome, post-resuscitation state.
Focus of work
The Lumia Foundation advises and supports families in questions about the care of their children and aims with its offers at the bureaucratic and psychosocial relief as well as the social networking of the families. The Lumia Foundation's help is free and independent.
offer
- Germany-wide advice
- Quick help up to long-term support
- Help in finding individual solutions
- Relief and coping talks
- Independent support in dealing with bureaucracy, authorities, cash registers and legal claims
- Support with transitions in the supply
- Passing on experience-based knowledge
- Mediation of further offers of help
- Networking of families with one another
- Personal visits if necessary
- Annual family get-togethers at various locations
- Provision of extensive knowledge in the family guide
Family guide
With the family guide, the foundation provides knowledge about the disease in eight themed booklets. It provides information, suggestions and examples for caring for sick children and for keeping their families healthy, explains legal requirements and gives practical tips. The guide covers a number of different topics that experience has shown concern families. It is based on a counseling practice, incorporates specialist knowledge from experts and passes on the experiences of affected families to others. The topic-related booklets offer parents the opportunity to obtain information independently and specifically according to their individual needs and current issues.
Book 1: Severe acquired brain damage and vegetative state in children and adolescents
Book 2: In rehab
Book 3: After rehab
Book 4: Long-term
relief Book 5: Self- care
Book 6: Between hope and grief
Book 7: Siblings
Book 8: Keeping track of things
Web links
Website of the Lumia Foundation
Family guide of the Lumia Foundation