Patient empowerment

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Patient empowerment ( borrowed from English , literally [partially translated from loan ] patient empowerment ) is the offering of resources for the individual, promoting solidarity and promoting a policy of civic participation. It aims to help people develop and improve the ability to shape their social environment and their own lives.

Specifically, patient empowerment includes all actions, for example by doctors or health organizations, which aim to ensure that those affected are better informed about the disease and treatment and can act more independently with regard to their disease. One of the most important points is teaching a higher level of health literacy . This is understood to mean the patient's ability to understand and assess important information about the disease and therapy. In this respect, it is also important that those affected are committed themselves, and that the patients themselves empower them ( patient competence ). However, there is a gap between social and educational levels in the population.

Use of patient empowerment measures

Studies show that the chances of successful treatment increase when patients are involved in medical decisions. However, in a study by the Mayo Clinic, the majority of cancer patients surveyed said they felt inadequately informed when it comes to understanding the disease, examination methods, diet, coping with stress and dealing with certain side effects. In the meantime, numerous countries and institutions have launched various patient empowerment campaigns. For example, since 2005 the European Union has been running various programs in cooperation with the World Health Organization (WHO) to promote patient rights and to better inform patients. In 2012, the first international conference on patient empowerment was held in Denmark. As a result of that conference, it was suggested that virtually everyone will be a patient at some point in their life. In order to achieve better treatment outcomes, it is essential to improve the ability to understand and manage one's own health and illness, to communicate with doctors and to find one's way around the complex health system.

literature

  • Philipp Grätzel von Grätz: “ Networked medicine . Patient empowerment and network infrastructures in medicine in the 21st century ”, Verlag Heinz Heise, Hanover, 2004, ISBN 3-936931-19-4 , p. 224.
  • Klaus Zerres, Christine Scholz (Ed.): “Focus on rare diseases in the context of health policy discussion: Implications of new technologies, legal regulations and patient engagement”; Munich: Verlag Med. Genetik, 2003, p. 96 (Series of publications: Medical Genetics Vol. 14, No. 3, supplement from the Professional Association Medical Genetics eV )
  • MHJ Gouthier: "Patient Empowerment", in: Kreyher, VJ (Ed.): Handbook Health and Medicine Marketing - Opportunities, Strategies and Success Factors, Heidelberg, 2001, pp. 53–82.
  • Eva Röthinger: "Patient expectations and their perception by the general practitioner as well as the influence of the patient on medical action - from the point of view of the doctors"; Marburg: Tectum-Verlag, 1999, p. 154 (Marburg, Univ., Dissertation, 1999)
  • Frank Elste: "Marketing and Advertising in Medicine"; Vienna: Springer-Verlag, 2008, p. 300.

Individual evidence

  1. ^ Anne McMurray (2007). Community Health and Wellness: A Sociological Approach (3rd ed.). Brisbane: Elsevier. ISBN 978-0-7295-3788-9 .
  2. ^ The Institute of Medicine: Health Literacy: A Prescription to End Confusion (2004). PMID 25009856
  3. Padrnos L, Bennett R, Kosiorek H, et al. Living with Cancer: an Educational Intervention in Cancer Patients Can Improve Patient-Reported Knowledge Deficit. J Cancer Educ (2016). doi: 10.1007 / s13187-016-1123-1 PMID 27730534
  4. Torrey, T. The Wise Patient's Guide to Being an Empowered Patient. Verywell. About, Inc (2014).
  5. Patient empowerment — who empowers whom? The Lancet 379, No. 9827, p1677 (2012). doi: 10.1016 / S0140-6736 (12) 60699-0