German Leukemia & Lymphoma Aid Foundation
| German Leukemia & Lymphoma Aid Foundation | |
|---|---|
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| Purpose: | § 2 of the statutes |
| Chair: | Michael Söntgen |
| Consist: | 4th October 2010 |
| Founder: | German Leukemia & Lymphoma Aid e. V. (DLH) |
| Foundation capital: | 105,750 euros |
| Number of employees: | 6 employees (4.38 full-time equivalents) |
| Seat: | Bonn |
| Website: | www.stiftung-dlh.de |
The German Leukemia & Lymphoma Aid Foundation is a foundation under civil law with legal capacity based in Bonn, which aims to improve the care of leukemia and lymphoma patients on a sustainable basis.
Founded by Deutsche Leukemia & Lymphom-Hilfe e. V. (DLH)
The foundation was established on October 4, 2010 by the self-help organization Deutsche Leukämie- & Lymphom-Hilfe e. V. (DLH) founded. The club saw in the establishment of a foundation the opportunity to significantly expand its sphere of influence and in addition to promoting self-help and research projects and distressed leukemia - and lymphoma - patients to support. In addition, the DLH association had previously come under fire along with several other patient organizations sponsored by the pharmaceutical industry. The association recognized that the pharmaceutical industry "has no unequivocal reputation in the self-help scene and beyond, due to a number of strong sales and advertising-oriented protagonists." Since other donors such as the health insurance companies put off bureaucratic hurdles and public funds flow very sparingly, the German Leukemia & Lymphoma Aid Foundation should also take on a role in the financial support of the DLH Federal Association and its groups in order to reduce the dependence on other donors.
The foundation, like the association, does not accept any money from the pharmaceutical industry. She is a signatory of the Transparent Civil Society Initiative .
Finances
The foundation has basic assets of 105,750 euros. In 2018, the foundation had income totaling 634,931.48 euros, including 1,480.23 euros in interest income, 175,963.34 donations and 38,170 euros in fines .
In the first few years of its existence, the foundation was involved in projects for patients with leukemia and lymphoma. This includes financial support for self-help and individuals in need, as well as funding for a study to alleviate the symptoms of chemotherapy- induced polyneuropathy .
Thanks to the continuously growing donations, the foundation was able to expand its funding activities and support other research projects. Since the beginning of 2018, it has been offering financial support for blood cancer patients who would like to have fertility-preserving measures carried out before their therapy. These are not financed by the statutory health insurance.
In 2012, the foundation also took a first sub-foundation, the Hermann Josef Beckmann Foundation, into its trusteeship. The foundation is named after Hermann Josef Beckmann, who left part of his fortune to the DLH. The association was supposed to establish a foundation with the aim of researching multiple myeloma and supporting self-help groups for patients with this disease.
In 2014 the foundation set up a commercial business, the conference forge. This organizes events for third parties. 100% of the profit it generates goes towards the foundation's purposes.
purpose
The foundation pursues exclusively charitable and benevolent purposes. The focus is on the following areas:
- Securing and maintaining the financial independence of patient self-help organizations, especially Deutsche Leukämie- & Lymphom-Hilfe e. V. and its subdivisions
- Support of suitable measures to combat and alleviate malignant diseases of the blood and lymphatic system
- Financial contributions in special individual cases
- Cooperation with other oncology institutions
- Participation in the award of research contracts
- Awarding of sponsorship prizes and grants for scientific work on the clinical pictures leukemia and lymphoma
organs
The work of the foundation is carried out by two bodies : the foundation board of trustees and the foundation board. The board of trustees is elected every two years by the DLH board of directors and consists of at least 60% people who belong to the board of the DLH club. The foundation's board of trustees appoints the foundation's board members .
The Chairman of the Board of Trustees is Peter Gomolzig, and the Chairman of the Board of Directors is Michael Söntgen.
Web link
Individual evidence
- ↑ a b c d [1] Articles of Association
- ↑ a b c d Current activity report [2] (PDF)
- ↑ Ursel Sieber: Healthy Doubt: Insights from a Pharmaceutical Critic - Peter Sawicki and his fight for an independent medicine . Berlin Verlag, 2010, ISBN 978-3-8270-0976-0
- ↑ Martina Keller : Patient wanted - pharmaceutical companies discover self-help organizations as a lucrative sales channel . In: Die Zeit , No. 51/2006
- ↑ Unequal partners. Patient self-help and commercial enterprises in the health sector . ( Memento of the original from August 22, 2013 in the Internet Archive ) Info: The archive link was automatically inserted and not yet checked. Please check the original and archive link according to the instructions and then remove this notice. (PDF) Editor: Substitute Funds and their Associations. April 2008, ISBN 978-3-00-022727-1
- ^ A b Foundation for German Leukemia & Lymphoma Aid (DLH Foundation) established . leukaemie-hilfe.de (DLH), November 25, 2010
- ↑ transparency.de ( Memento of the original from September 5, 2017 in the Internet Archive ) Info: The archive link was inserted automatically and has not yet been checked. Please check the original and archive link according to the instructions and then remove this notice. , accessed March 6, 2014
- ^ [3] DLH Foundation
- ^ Activity reports [4] of the DLH Foundation
- ↑ Beckmann Foundation [5]
- ↑ Conference forge [6]
