Family ties foundation

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The FamilienBande Foundation has been supporting siblings of chronically ill or disabled children since 2012. The foundation has set itself the goal of promoting or initiating sibling projects in Germany together with scientists, politicians, doctors and partners from the health, social and family sectors. The central guiding principle here is helping people to help themselves. The foundation emerges from the FamilienBande initiative , which was launched by the Novartis Group Germany in 2010.

background

Around two million children and young people in Germany live with a seriously chronically ill or disabled sibling. The sick or handicapped child inevitably plays a central role in families. Healthy siblings therefore often receive less attention, and they are constantly under pressure to have to function because the brother or sister already demands enough of the family.

Sibling risk group

Siblings have an increased risk of psychological stress such as adjustment problems, isolation, anxiety or depression and increased problems in the family, school or leisure time. This is proven by a large part of the few sibling studies carried out to date. Nevertheless, it can be assumed that the vast majority of siblings show only a low degree of stress. The risk of intense psychosocial problems and stress in siblings of chronically ill children is less dependent on the type of chronic illness than on the daily care requirements associated with the illness and its treatment and the family stress. The risk of mental health problems and disorders can be 2 to 3 times higher in siblings than in siblings of children who are not ill, and the stress can persist for several years. Since around 22% of children and adolescents in the general population have psychological problems, around 60% of children with a chronically ill sibling may have a correspondingly increased psychosocial burden. With the aim of identifying at an early stage those siblings who are at increased risk of mental health problems, FamilienBande has formulated a model of different levels of stress. According to the model should

  • Children with low exposure (approx. 70%) information, education or training and education,
  • Children with moderate stress (approx. 20%) also have special offers for siblings and the entire family and
  • Highly stressed children (approx. 10%) are also offered therapy.

Guiding principles

FamilienBande is based on three pillars:

  1. The aim is to arouse and educate the public about the subject in the professional world and the general public.
  2. Existing offers for siblings are identified, evaluated and made accessible. New offers are developed together with experienced partners from research and practice and offered to the institutions for adaptation. These offers offer concrete support and guidance in dealing with the special life situation.
  3. Instruments and strategies are developed for the early detection of special care needs. The measures are evaluated.

partner

The foundation is supported by the associated companies in the Novartis Group. FamilienBande relies on a network of scientists and practitioners with experience in social pediatrics and in working with siblings and their families. The central scientific partners of FamilienBande are the Institute for Social Medicine in Pediatrics Augsburg (ISPA / Bunter Kreis ) and the Institute for Health Promotion and Health Services Research at the University of Bochum (IGV). A scientific council advises FamilienBande on all questions of content development.

Support is provided by public figures, etc. a.

Web links

Individual evidence

  1. ↑ Statistical Yearbook 2007: Agency for Healthcare Research and Quality (2009) Testimony on Comparative Effectiveness Research; National Health Interview Survey 2000-2003. National Center for Health Statistics, Centers for Disease Control.
  2. ↑ Sharpe & Rossiter, 2002; Williams 1997; Meta-analysis USA
  3. ↑ Newacheck & Halfon, 1998; Gallo & Szychlinski, 2003
  4. ↑ Cadman et al., 1988; Sahler et al., 1994
  5. ↑ Breslau & Prabucki 1987
  6. ↑ Ravens-Sieberer, Wille, Bettge & Erhart, 2007