Rare Disease Day

The Rare Disease Day was in Europe and Canada for the first time committed on 29 February 2008 to consider the concerns of the public that of rare diseases to make those concerned aware. Call was the day of rare diseases of EURODIS , a non-governmental patient-driven alliance of patient organizations. The rarest day of the year, the leap day that only occurs every four years, was deliberately selected. In non-leap years, Rare Disease Day is celebrated on February 28th. However, the reception in the media is then less.

motto

Every year, the rare diseases are viewed from a special point of view and placed at the center of global campaigns with a motto:

• 2020 - Rare is many. Rare is strong. Rare is proud! (Rare means many. Rare is strong. Rare is proud!)
• 2019 - Bridging health and social care ( bridging health and social care )
• 2018 - Set your mark for the rare (Show your rare - Show you care)
• 2017 - Research helps heal! (With research possibilities are limitless)
• 2016 - vote for the rare ones! (Join us in making the voice of rare diseases heard)
• 2015 - day by day, hand in hand (day-by-day, hand-in-hand)
• 2014 - Join together for better care
• 2013 - Solidarity without borders (Rare disorders without borders)
• 2012 - Rare but strong together
• 2011 - Rare but equal
• 2010 - Patients and researchers - partners for life
• 2009 - Rare diseases as a public health priority
• 2008 - Rare diseases as a public health priority

See also

• Alliance of Chronic Rare Diseases (ACHSE)

Web links

• Rare Disease Day (English)
• Facts about Rare Disease Day - The Orphans Among Diseases. SWR television from February 24, 2016
• Angelika Lukesch: Support for rare diseases. In: Mittelbayerische Zeitung of February 29, 2016
• Anno Fricke: Rare Disease Day: Alone, Alone. In: aerztezeitung.de. February 27, 2015, accessed July 26, 2016 . 
• Danny Grid: Day of action in the municipal clinic: Rare Disease Day in Dessau. In: mz-web.de. July 26, 2016. Retrieved July 26, 2016 . 
• What are rare diseases? - Plus Drei (+3), pp. 8–13, accessed on March 5, 2019

Individual evidence

1. ↑ Homepage of EURODIS
2. ↑ Overview of Rare Disease Day 2008 website at rarediseaseday.org, accessed July 27, 2016
3. ^ Rare Disease Day
4. ↑ Overview of past Rare Disease Days , accessed February 29, 2020.