EUROCAT

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European network of population-based registries for the epidemiological surveillance of congenital anomalies
(EUROCAT)
founding 1978
Seat Ispra ( ⊙ coordinates: 45 ° 48 ′ 35.9 ″  N , 8 ° 37 ′ 16.1 ″  E )
purpose Europe-wide registration of malformations
Chair Amanda Neville
Website www.eurocat-network.eu

EUROCAT ( European network of population-based registries for the epidemiological surveillance of congenital anomalies ) is an organization that brings together registers for malformations across Europe in order to collect epidemiological data for all of Europe and make them available in a summarizing malformation register . It is their aim to achieve a comparability of the data of the different countries.

The name EUROCAT is an acronym from the original name of the organization, which was founded in 1978 as the European registration of congenital abnormalities and twins .

management

The association is headed by a steering committee with a president and four other elected and three unelected members.
Amanda Neville from the University of Ferrara ( Italy ) is the president until 2021 .

activity

EUROCAT recorded 1.2 million births per year in 2005, which is 25% of the total number of European births. According to its own information, EUROCAT recorded 1.5 million births in 20 countries in 2011.

history

The idea was developed in 1974 during a meeting of the European Economic Community on a recommendation from its Committee for Medical Research (CRM).

It was one of three “Concerted Action Projects” of the First Medical Research Program of the European business community.
The three projects were

  1. Cell aging and restricted functional capacity of organs,
  2. Extracorporeal oxygenation and
  3. Registration of malformations.

They were decided in 1978.

EUROCAT began working with registers from nine countries: Belgium , Denmark , France , Germany , Ireland , Italy , Luxembourg , the Netherlands and the United Kingdom .

The central register was initially located at the Department of Epidemiology at the Université catholique de Louvain in Brussels , moved to the London School of Hygiene and Tropical Medicine for a year in 1999 , and then from 2000 to 2014 at the University of Ulster . On January 1, 2015, the central register was again transferred to the European Commission's Joint Research Center (JRC) in Ispra ( Italy ).

See also

Web links

Individual evidence

  1. ↑ Dolk H: EUROCAT: 25 years of European surveillance of congenital anomalies . In: Arch. Dis. Child. Fetal Neonatal Ed. . 90, No. 5, 2005, pp. F355-8. doi : 10.1136 / adc.2004.062810 . PMID 16113149 . PMC 1721939 (free full text).
  2. ↑ Weatherall JACW The beginnings of EUROCAT Louvain-la-Neuve, Belgium: Cabay, 1985 ( www.eurocat-network.eu , PDF; 3.3 MB)
  3. ↑ EUROCAT network History and Funding