Effy Vayena

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Effy Vayena (actually Eftychia ; * 1972 in Lefkada , Greece ) is a Greek-Swiss bioethicist who works as a professor at the Institute for Translational Medicine at ETH Zurich . She researches the ethical, legal and social effects of personalized medicine , digital health and big data within health research and clinical practice as well as other medical ethical issues.

Career

Vayena grew up as one of two daughters of her parents on the western Greek island of Lefkada. Her mother died when she was sixteen years old. She completed a bachelor's degree in Classical Languages ​​and History, but towards the end of her studies her main interest was in the history of science. For her master's degree in the philosophy and history of science , she therefore moved to University College at the University of London , where she wrote her thesis on in-vitro fertilization and other reproductive medicine methods.

After completing her master's degree, she moved to the University of Minnesota , where she - supplemented by a year at Harvard - received her doctorate in 1999 with a thesis on medical social history. From 2000 to 2007 she headed a team in the field of reproductive medicine and scientific ethics as a technical officer for the World Health Organization . In order to be able to carry out her own research projects again and for family reasons, Vayena then moved to the University of Zurich (UZH) as a research assistant with several short-term contracts , where she worked in the following years at the Institute for Biomedical Ethics on the subjects of bioethics and law. She wrote her habilitation thesis in 2014 on the ethical challenges and controversies of personal genomics, i.e. individual genetic analyzes.

In order to research the social effects of personalized medicine , she received an assistant professorship from the Swiss National Science Foundation in 2015 , with which she headed the Institute for Epidemiology , Biostatistics and Prevention at UZH. She was also visiting professor at Harvard between 2016 and 2018 . In 2017 she was appointed professor at the Health Ethics and Policy Lab at the Institute for Translational Medicine at ETH, where she has been researching and teaching ever since.

Effy Vayena is the mother of two daughters.

Publications (selection)

  • Personal genomics in the clinic and beyond: ethical challenges and controversies . Zurich 2014 (English, habilitation thesis).
  • with Alessandro Blasimme: Biomedical Big Data: New Models of Control Over Access, Use and Governance . In: Journal of Bioethical Inquiry . tape 14 , no. 4 . Springer Netherlands, December 2017, ISSN  1872-4353 , p. 501-513 , doi : 10.1007 / s11673-017-9809-6 (English).
  • with Tobias Häusermann, Bastian Greshake, Alessandro Blasimme, Darja Irdam, Martin Richards: Open sharing of genomic data: who does it and why? In: PLOS ONE . tape 12 , no. 5 . Frankfurt am Main 2017, p. e0177158 , doi : 10.1371 / journal.pone.0177158 , urn : nbn: de: hebis: 30: 3-432488 (English).

Editing

  • with Isabel Klusmann (Ed.): Personalized Medicine: Hope or Empty Promise? vdf, Hochschulverlag AG, Zurich 2016, ISBN 978-3-7281-3576-6 .

Web links

Individual evidence

  1. Celia Luterbacher: Experiment with ideas . In: Swiss National Fund for the Promotion of Scientific Research / Swiss Academies of Sciences (Ed.): Horizonte . tape 112 . Bern March 2017, p. 26–37 ( digitized via horizonte-magazin.ch [PDF]).
  2. a b c d e Nik Walter: Expert on fundamental questions . In: The Bund . ( derbund.ch [accessed on September 29, 2019]).
  3. Bioethics - Prof. Effy Vayena (Core). Retrieved September 29, 2019 .
  4. Effy Vayena, Institute for Biomedical Ethics, University of Zurich | GEN SUISSE. Retrieved September 29, 2019 .
  5. ^ A b c Anna Garry: Prof. Effy Vayena (Greek / Swiss) . In: Inspiring Conversations with Women Professors: The Many Routes to Career Success . Academic Press, 2019, ISBN 978-0-12-812550-2 , pp. 108-114 ( books.google.de ).
  6. a b Effy Vayena, Isabel Klusmann (ed.): Personalized medicine: Hope or empty promise? vdf, Hochschulverlag AG, Zurich 2016, ISBN 978-3-7281-3576-6 , p. 228-229 .
  7. Personal genomics in the clinic and beyond: ethical challenges and controversies. recherche-portal.ch, 2014, accessed on September 29, 2019 (English).
  8. What Effy Vayena is researching | NZZ . August 18, 2015, ISSN  0376-6829 ( nzz.ch [accessed on September 29, 2019]).