Datteln Children's Palliative Center

Datteln Children's Palliative Center
Sponsorship	Vestische Caritas-Kliniken GmbH
place	Dates
state	North Rhine-Westphalia
Country	Germany
management	Boris Zernikow
Affiliation	Vestische Kinder- und Jugendklinik Datteln , University of Witten / Herdecke
founding	June 2010
Website	www.kinderpalliativzentrum.de

The Children's Palliative Center at the Vestische Children's and Youth Clinic Datteln , University of Witten / Herdecke is a special facility for the comprehensive care of children, adolescents and young adults with life-threatening illnesses. It houses the first pediatric palliative ward in Germany called "Lichtblicke".

History and Development

Since 1999, children with life-threatening illnesses have been cared for by a specialized team at the Vestische Children's and Youth Clinic in Datteln - initially on a voluntary basis. In 2005, the clinic was awarded the first palliative beds in the hospital plan of the state of North Rhine-Westphalia. In 2006 Boris Zernikow and his team founded the Vodafone Foundation Institute for Pediatric Pain Therapy and Pediatric Palliative Medicine (VIKP) (2006–2012). The establishment and expansion of the institute was made possible by the long-term financial support of the Vodafone Foundation Germany .

Together with the Center for Palliative Medicine of the Malteser Hospital Bonn and the Clinic for Pediatrics of the University Hospital Bonn , the VIKP carried out the first national model project implemented by the North Rhine-Westphalia State Initiative of the Ministry of Labor, Health and Social Affairs (MAGS) from 2007 to 2009 for nationwide outpatient palliative care for children and adolescents.

The VIKP became the Children's Palliative Center in 2010 and the German Children's Pain Center in 2012 . In order to further strengthen the academic activities in the field of pediatric pain therapy and pediatric palliative medicine and to act as a contact for politics and science, the Chair for Pediatric Pain Therapy and Pediatric Palliative Medicine was established at the University of Witten / Herdecke in 2008 with the support of the Vodafone Foundation Germany.

Structure and structure

Children, adolescents and young adults with a life-threatening illness receive medical, nursing and psychosocial care in the Datteln Children's Palliative Center, both on an outpatient basis through specialized outpatient palliative care (SAPV) and on an inpatient basis. The "Lichtblicke station" is a specialist station for pediatric palliative medicine , where up to eight patients can be admitted together with their parents and siblings. The dynamic development of pediatric palliative and pain medicine leads to an immense need for further and advanced training for all professional groups involved. In order to do justice to this, the Children's Palliative Center offers qualified seminars and workshops for employees in the fields of nursing, medicine and psychosocial care.

Research and Teaching

In 2008 Boris Zernikow was appointed to the chair for pediatric pain therapy and pediatric palliative medicine at the University of Witten / Herdecke. This was the first chair for child palliative care in Europe. He was followed by the True Colors Trust Chair in Child Palliative Care at the Institute of Child Health at University College London and Great Ormond Street Hospital, which Myra Bluebond-Langner has held since 2010.

In pediatric palliative care, the Chair for Pediatric Pain Therapy and Pediatric Palliative Medicine - Witten / Herdecke University focuses on the following research areas:

Sleep disorders, daytime restlessness, pain and dyspnea in children with life-threatening and life-limiting diseases
Recording of symptoms and quality of life in the end of life of children and adolescents with oncological diseases
Supply of pediatric palliative patients with multi-resistant germs
Voluntary work in palliative care
Evaluation of inpatient palliative medicine

In addition to various courses and events, students have the opportunity to do their doctorate at the Chair of Pediatric Pain Therapy and Pediatric Palliative Medicine.

financing

The construction of the children's palliative center was realized exclusively through third-party funding. The RTL Foundation - We Help Children , the NRW Welfare Foundation and the German Cancer Aid played a special role . The Freundeskreis Kinderpalliativzentrum Datteln eV was founded in 2010 to finance the running costs that are not borne by the health insurances - this includes above all the financing of the employees of the psychosocial team and additional care centers. The share of third-party funds in the total annual costs is around 30%.

literature

Boris Zernikow (ed.): Palliative care for children, adolescents and young adults . 2nd Edition. Springer , Berlin, Heidelberg 2012, ISBN 978-3-642-29610-9 ( limited preview in Google book search).

Web links

Individual evidence

^ Vodafone Foundation (ed.): The foundation year 2006/2007. Düsseldorf 2007, 61–63.

↑ Boyé, H., Bredow, H., Caracciolo, P. et al: The long road to comprehensive outpatient palliative care for children, adolescents and young adults - half gone. In: Ministry of Labor, Health and Social Affairs of the State of North Rhine-Westphalia (Ed.): Outpatient palliative care for children and young people. Final report of the accompanying research on the North Rhine-Westphalian state initiative. Düsseldorf 2009. 21–38.

↑ Website of the Children's Palliative Center Datteln , accessed on February 22, 2016

↑ Website of the Chair for Pediatric Pain Therapy and Pediatric Palliative Medicine ( Memento of the original from March 4, 2016 in the Internet Archive ) Info: The archive link has been inserted automatically and has not yet been checked. Please check the original and archive link according to the instructions and then remove this notice. , accessed February 22, 2016 @1@ 2

↑ Numbers and facts. Website of the Children's Palliative Center Datteln, accessed on February 22, 2016

[1] Vodafone Foundation (ed.): The foundation year 2006/2007. Düsseldorf 2007, 61–63.

[2] Boyé, H., Bredow, H., Caracciolo, P. et al: The long road to comprehensive outpatient palliative care for children, adolescents and young adults - half gone. In: Ministry of Labor, Health and Social Affairs of the State of North Rhine-Westphalia (Ed.): Outpatient palliative care for children and young people. Final report of the accompanying research on the North Rhine-Westphalian state initiative. Düsseldorf 2009. 21–38.

[3] Website of the Children's Palliative Center Datteln , accessed on February 22, 2016