Rehabilitation center Ederhof

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Rehabilitation center Ederhof
Sponsorship Rudolf Pichlmayr Foundation
place Iselsberg-Stronach (Tyrol)
state Tyrol
Country Austria
Coordinates 46 ° 49 '45 "  N , 12 ° 51' 21"  E Coordinates: 46 ° 49 '45 "  N , 12 ° 51' 21"  E
executive Director Robert Weichselbraun
beds 35 patient beds and 20 beds for accompanying persons
Employee 31
including doctors 6th
areas of expertise Rehabilitation center for children, adolescents and families before and after organ transplants
founding 2nd September 1992
Website ederhof.eu
Template: Infobox_Krankenhaus / Logo_misst

The Ederhof Rehabilitation Center is a rehabilitation facility that specializes in organ transplanted children and adolescents and is based in the Tyrolean community of Iselsberg-Stronach . The facility is located in the eponymous Ederhof , the birthplace of the painter Franz von Defregger , and is operated by the Rudolf Pichlmayr Foundation. The Ederhof is the only rehabilitation center in Austria that specializes in children. It is included in the current list of hospitals by the Federal Ministry for Social Affairs, Health, Care and Consumer Protection and is supported by the Tyrolean state government. The therapy concept, which is specially tailored to children and adolescents before and after a transplant as well as to their families, is unique in Europe.


Photo of the Ederhof from 2019. The Ederhof is shown together with its idyllic natural location in early summer 2019.
The Ederhof

history

The history of the Ederhof Rehabilitation Center begins with Rudolf Pichlmayr and his wife Ina Pichlmayr , both professors at the Hannover Medical School . When the drug cyclosporine came onto the market in 1983, Rudolf Pichlmayr saw it as an opportunity to expand organ transplantation to children with congenital organ damage or threatened organ failure. Despite the good medical successes, however, problems remained on the social and psychological level. Ina Pichlmayr writes: "A few years after the first child transplant, we realized that the special social status of these children was not an isolated phenomenon, but a general problem."

When they noticed that the rehabilitation centers at that time did not accept children because they lacked the medical expertise about the follow-up treatment of these cases, they were determined to set up a rehabilitation center for these children and adolescents and set up a corresponding foundation - today's Rudolf Pichlmayr- Foundation, endowment.

They found a suitable location for their project in the Austrian municipality of Iselsberg-Stronach: an abandoned farm, the Ederhof. By recognizing the fundamental freedoms of the community , which Austria accepted in the run-up to EU accession, they were able to buy and use the Ederhof in 1990 through their “Foundation for Rehabilitation after Organ Transplantation of Children and Young People”. During this time, a concept was developed at interdisciplinary meetings of transplant physicians, paediatricians, psychologists and physiotherapists, the focus of which was on an individually tailored training program involving the entire family. The renovation work began in 1992. The Ederhof was officially opened on September 2, 1992 by the then Austrian Chancellor Franz Vranitzky , in the presence of an auxiliary bishop and supporters of the project.

In 1993 the KfH (Kuratorium for Dialysis and Kidney Transplantation) set up two dialysis places on the Ederhof and took over some of the beds. Despite the successes in rehabilitation, the first years were difficult because the German health insurance companies now required individual permits for spa stays abroad due to the health reform at the time. Also the personnel expenses were not covered by the cash register rates.

It is thanks to the commitment of the Pichlmayr family in collaboration with the physician Eckhard Nagel that the Ederhof has been steadily expanded as a non-profit recognized special hospital even after the death of Rudolf Pichlmayr in 1997 and still exists today. Initially, Ina Pichlmayr ran the rehabilitation center and oversaw numerous renovations that were to provide well-equipped, functional rehabilitation units for future residents. She succeeded in attracting well-known sponsors and establishing the center with the health insurance companies. Ina Pichlmayr was awarded the highest award in the country, the Tyrolean Eagle Order , for her commitment .

In 2001 the family foundation was transformed into a foundation with a board of directors. Ina Pichlmayr handed over the chairmanship of the foundation as well as the medical management of the Ederhof to her husband's long-term employee, Eckhard Nagel . Since then, the Ederhof has been adapted more and more to the needs of the patients, both structurally, conceptually and personally. Since 2013, the rehabilitation programs have been structured according to the age of the patient as so-called infant rehabilitation, family-oriented rehabilitation and youth rehabilitation. The experiential educational concept of youth rehab was recognized at the international congress “Experience and Learning” at the University of Augsburg in 2016.

The wife of the Federal President Elke Büdenbender (left) paid tribute to the work of the Ederhof at an anniversary event in 2017 and congratulated Ina Pichlmayr (right) and Eckhard Nagel.

Structural changes were made through extensive modernization of the building in 2008. In September 2017, the Ederhof celebrated its 25th anniversary. The Rudolf Pichlmayr Foundation, the sponsor of the rehabilitation center, also hosted an anniversary event. The laudation at this benefit matinee in Hanover was given by the wife of the current Federal President Frank-Walter Steinmeier, Elke Büdenbender . In the same year, a redesign of the outdoor area began: the playground belonging to the rehabilitation center was completely renovated and inaugurated in spring 2018. The Ederhof has also had its own therapy garden since autumn 2019.

The Ederhof and the Rudolf Pichlmayr Foundation are supported by a number of public figures: These include the current German President Frank-Walter Steinmeier (honorary member of the board of directors of the Rudolf Pichlmayr Foundation) as well as the lung-transplanted pop singer Roland Kaiser , the singer Jasmin Wagner ("Blümchen") and the MILKY CHANCE bank .

Facility

The Rehabilitation Center Ederhof is an institution of the Rudolf Pichlmayr Foundation that specializes in the rehabilitation of organ transplanted children and adolescents and is a list hospital of the Austrian Federal Ministry of Health . It is considered the only rehabilitation facility specifically for children in Austria and has been supported by the German KfH Board of Trustees for Dialysis and Kidney Transplantation since 1993 with its therapy concept, which is unique in Europe . The Ederhof is certified by the Federal Association for Rehabilitation (BAR) and the quality management system of the German Pension Insurance Association for Rehabilitation Clinics (QMS-Reha®).

Under the medical direction of Eckhard Nagel , the center with 39 employees offers interdisciplinary support and aftercare for children and adolescents before and after organ transplantation, mostly in the form of family-oriented rehabilitation. The therapy concept focuses on the following areas: medical care, sports physiological measures and psychosocial stabilization.

The aim of the rehab is to give the children and their families a time of rest and togetherness with other affected people in the middle of the East Tyrolean nature. The road to a life-saving transplant is difficult, often very long, and returning to everyday life is associated with many obstacles. At the Ederhof the children and their families have time to process what they have experienced and prepare for new things. They should return to their everyday lives after rehab with fresh energy, an expanded understanding of the disease and a new courage to face life. Doctors, nurses, educators, sports and psychotherapists work hand in hand.

The rehabilitation program is basically tailored to the respective child and his / her family or to the young person (s). The range of exercise and leisure activities is partly based on the seasonal conditions. During winter rehab, for example, skiing and tobogganing are an integral part of the range of exercise, while climbing and rafting are possible in summer. Thanks to the financial support from the Rudolf Pichlmayr Foundation, the Ederhof can offer a more comprehensive range than the cost bearers are willing to take on.

Around 250 patients a year come to the Ederhof for rehabilitation. Playground of the Ederhof.

Every year around 250 patients from all over Europe come to the Ederhof - most of them from Germany. Austrian families also make up a large proportion. Most of the children suffer from diseases of the kidneys, heart or liver. Children with kidney disease who come before the transplant can use dialysis places offered at the Ederhof in cooperation with the Kuratorium for Dialysis and Kidney Transplantation (KfH). There are rooms for medical, psychological and hemodialysis therapies, a gym, a massage room and a medical bath. There is a children's playground and a therapy garden on the outside area.

Spread over the year, patients can take part in three to four-week rehabilitation units specially tailored to their needs. A distinction is made between units for families with small children (“infant rehab”), for families with school children (“family-oriented rehab”) and for young people (“youth rehab”). At the same time, up to eleven families, i.e. sick children as well as their parents and siblings, or up to 35 adolescent patients are cared for at the Ederhof per rehabilitation unit.

Due to the high demand, patients have had to be turned away for a number of years, for reasons of capacity, especially during the vacation months. An expansion of the Ederhof is therefore planned in order to be able to help more families more quickly in their difficult situation in the future. The Tyrolean state parliament already spoke in 2014 for an extension of the Ederhof.

Ederhof

The Ederhof zu Stronach in the municipality of Dölsach was an agricultural business that was owned by the Eder family until the middle of the 19th century. Then Anton Eder sold the farm to Mathias Defregger (1805-1858), whose family had been running the Oberhofer estate in Gödnach, into which they had married, since the 17th century. On April 30, 1835, Franz Defregger was born on the Ederhof. After his older brother Michael died as a child, Franz Defregger took over the farm after the death of his father in 1858. Since he intended to emigrate to America and wanted to pay off his sisters, he sold the Ederhof to a cousin in 1860 and went to Paris and later to Munich, where he became a well-known history painter and art professor.

On August 13, 1888, the Ederhof received a plaque as the birthplace of Franz von Defregger in recognition of the donation of the Anna refuge by the Austrian Tourist Club. The Ederhof is the motif of several paintings by Franz Defregger and a pen drawing by Franz Pichler from around 1920. The representations were also sold as postcards and facsimiles in the following years .

In 1990 the Rudolf Pichlmayer Foundation bought the abandoned Ederhof and converted it into a special hospital by 1992.

A painting by Franz Defregger in what is now the dining room of the Ederhof Rehabilitation Center commemorates the painter.

Painting by the painter Franz Defregger in today's dining room of the Ederhof Rehabilitation Center

literature

  • Eckhard Nagel, Petra Schmidt: Transplants . Springer Verlag, Berlin / Heidelberg 1996, ISBN 3-540-60525-8 .
  • Eckhard Nagel, Dietrich Löhlein: Pichlmayr's surgical therapy . Springer Verlag, Berlin / Heidelberg 2006, ISBN 3-540-65980-3 .
  • L. Winkler, K. Jähn, E. Nagel: On the importance of family-oriented rehabilitation after organ transplantation using the example of the special hospital of the Rudolf Pichlmayr Foundation "Ederhof". In: Ulrich Frei (Hrsg.): Ensuring long-term survival after kidney transplantation: influencing factors and treatment concepts . Springer Verlag, Berlin / Heidelberg 2001, ISBN 3-540-41263-8 , pp. 176-187. (Conference paper, Berlin 2000)

Web links

Individual evidence

  1. ^ List of hospitals in Austria. Status January 2020. Federal Ministry for Social Affairs, Health, Care and Consumer Protection, accessed on June 24, 2020 .
  2. ↑ Rule with determination. Secure the future of Tyrol. Government program for Tyrol 2018 - 2023. Tyrolean provincial government (2018), accessed on June 17, 2020 .
  3. ↑ Gerald Hauser : Maintenance and expansion of the Ederhof Children's Rehabilitation Center . Ed .: Parliament of the Republic of Austria . Question 6405 / J, September 4, 2015 ( parlament.gv.at [PDF]).
  4. ^ Federal Ministry for Labor, Social Affairs, Health and Consumer Protection (Ed.): Hospitals in Austria . Verlag F. Bruckmann, 2008, p. 139 ( bmg.gv.at [PDF]).
  5. ↑ Ina Pichlmayr (2002): Prof. Rudolf Pichlmayr and the origin of the Ederhof: In: Ederhof Infobrief 1, October 2002. Accessed on June 24, 2020 .
  6. ↑ Winkler, K. Jähn, E. Nagel: Ensuring long-term survival after kidney transplantation: influencing factors and treatment concepts; with 18 tables . Ed .: Ulrich Frei. Springer, Berlin 2001, ISBN 3-540-41263-8 , pp. 176–187 (248581257 [accessed June 24, 2020]).
  7. ↑ Adventure education award goes to Ederhof. October 13, 2016. Osttiroler Bote (2016), accessed on June 24, 2020 .
  8. ↑ a b E. Hilgrtner: 25 years of Ederhof: emotional anniversary. In: East Tyrol Today. September 12, 2017. Retrieved July 11, 2018 .
  9. ↑ Elke Büdenbender (2017): Laudation at the benefit matinée of the Rudolf Pichlmayr Foundation. November 12, 2017. Retrieved June 20, 2020 .
  10. ^ Rudolf Pichlmayr Foundation (2018): Evonik managers at the Ederhof. Retrieved June 20, 2020 .
  11. ^ Rudolf Pichlmayr Foundation (2020): Prominent Ambassadors. Retrieved June 24, 2020 .
  12. ↑ a b KfH (2020): Cooperation partnership with the Ederhof Rehabilitation Center. Retrieved June 24, 2020 .
  13. ↑ Hans Ebner (2015): A milestone for the Ederhof. meinviertel.at, accessed on June 24, 2020 .
  14. ↑ Ederhof Rehabilitation Center. In: KfH. Board of Trustees for Dialysis and Kidney Transplantation, accessed on July 10, 2018 .
  15. ↑ Gerald Hauser: Maintenance and expansion of the Ederhof Children's Rehabilitation Center. Ed .: Parliament of the Republic of Austria. Inquiry 6405 / J, September 4, 2015, accessed June 24, 2020 .
  16. ↑ Philosophy and concept of the Ederhof rehabilitation center. Retrieved June 24, 2020 .
  17. ↑ The Ederhof: How it all began. Retrieved June 24, 2020 .
  18. ^ Tiroler Landtag (2014): Documentation of the discussion on the expansion of the Ederhof rehabilitation center. Retrieved June 24, 2020 .
  19. ^ Joachim Defregger: Franz von Defregger . ( straganzhof.at [PDF]).
  20. ^ K. Rosegger: How Defregger became a painter . In: K. Rosegger (Ed.): Heimgarten. A monthly . Leykam, Josefsthal 1877, p. 816 ( limited preview in Google Book search).
  21. ↑ Franz von Derfregger . In: New Austrian biography from 1815 . tape 4 . Amalthea Verlag, 1927, p. 101 ff . ( limited preview in Google Book search).
  22. ↑ a b Hans Peter Defregger: Defregger: 1835–1921, Volume 1 . Rosenheimer Verlagshaus, 1983, ISBN 3-475-52653-0 , p. 7th ff . ( limited preview in Google Book search).
  23. ↑ Alexandra Ankwicz von Kleehoven: Franz von Defregger: for the artist's hundredth birthday on April 30, 1935 . In: At the domestic hearth: Swiss illustrated monthly . 38 (1934–1935) issue 16 ( e-periodica.ch ).
  24. ↑ The Art for All ..., Volume 3 . Verlag F. Bruckmann, 1888, p. 363 ( limited preview in Google Book search).
  25. ^ ÖTK Dölsach: Anna-Schutzhaus, 1992 m. In: Outdooractive. Retrieved July 11, 2018 .
  26. ^ Gutenberghaus W. Merkl (Ed.): Birthplace of the painter Franz von Derfregger. Lithograph after a pen drawing by the architect Franz Pichler . Klagenfurt 1920 ( bildarchiv-kulturforschung.at ).