Sam Berns

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Sampson Gordon "Sam" Berns (born October 23, 1996 in Providence , Rhode Island , † January 10, 2014 in Foxborough , Massachusetts ) was an American activist and philosopher who suffered from the genetic mutation disease progeria . Through his work he helped to create awareness for this disease in the population. It was the subject of the HBO- produced documentary reality show called Life According to Sam .

Life

Sam Berns was born in Providence, Rhode Island in 1996. He was the son of Scott Berns and Leslie Gordon, both paediatricians . At the age of 22 months, Sam was diagnosed with progeria. About a year later, his family set up the foundation called the Progeria Research Foundation . The foundation serves to sensitize the population to the topic of progeria, to promote research in the field of the disease and possible treatments, and to support progeria sufferers and their families.

Boston Bruins

On November 9, 2013, the Boston Bruins welcomed Berns by solemnly letting him throw the first puck to start the game. Berns and Zdeno Chára - at that time the captain of the Bruins - had been close friends since 2006, when Berns Chára was allowed to meet after a Bruins game.

Lecture at TEDxMidAtlantic

In his lecture at TEDx MidAtlantic, he explained his three theses for a happy life. This lecture, almost three months before his death, was filmed and also published on Youtube . His three theses in the lecture were:

  1. "Be OK with what you ultimately can't do, because there is so much you CAN do." - "Just accept when you really can't (do) something, because there is a lot you can do."
  2. "Surround yourself with people you want to be around." - "Surround yourself with people you like to be with."
  3. "Keep moving forward." - “Go on and on. / Do not give up."

At the end of the video, he added the advice to these three theses that if you can, you should “not miss a party” (in the original: “Never miss a party if you can help it.”).

death

Photo of Sam Berns' parents at the Peabody Awards .

Sam Berns died in Foxborough at the age of 17. It exceeded the normal life expectancy of progeria patients by about four years. His death caused grief in his homeland and many other countries.

Web links

Individual evidence

  1. ↑ a b c Margalit Fox: Sam Berns, 17, Public Face of a Rare Illness, Is Dead . The New York Times . Retrieved January 14, 2014.
  2. ^ The Short, Remarkable Life of Sam Bern's Turned Spotlight on Progeria . Nationalgeographic. Retrieved January 14, 2014.
  3. ↑ Sam Berns, Star of Life According to Sam, Dies at Age 17 - Regina Weinreich . The Huffington Post . Retrieved January 14, 2014.
  4. ↑ muere sam berns
  5. ^ Progeria Research Foundation - Our Story . Progeria Research Foundation. Retrieved January 15, 2014.
  6. ^ Progeria Research Foundation - Quick Facts . Progeria Research Foundation. Retrieved January 15, 2014.
  7. ↑ Michele R. Berman: Life According To Sam Berns . MedPage Today . October 16, 2013. Retrieved January 14, 2014.
  8. ↑ Vera Titunik: Revisiting Sam Berns . The New York Times Magazine . October 2, 2012. Archived from the original on December 29, 2014. Info: The archive link was automatically inserted and not yet checked. Please check the original and archive link according to the instructions and then remove this notice. Retrieved on January 14, 2014. @1@ 2Template: Webachiv / IABot / 6thfloor.blogs.nytimes.com
  9. ↑ Sam Berns: 17-year-old dies as an old man.Retrieved December 29, 2014.
  10. ↑ Advice from a Dying Man Never miss a party! Retrieved December 29, 2014.
personal data
SURNAME Berns, Sam
ALTERNATIVE NAMES Berns, Sampson Gordon (full name)
BRIEF DESCRIPTION American progeria patient and documentary actor
DATE OF BIRTH October 23, 1996
PLACE OF BIRTH Providence , Rhode Island
DATE OF DEATH January 10, 2014
Place of death Foxborough , Massachusetts