Federal working group self-help
The Federal Association self-help of people with disability and chronic illness and their families e. V. ( BAG Selbsthilfe for short , proper spelling BAG SELBSTHILFE ) is an umbrella organization of 117 federal associations, 13 state working groups and 5 professional associations of self-help organizations for disabled and chronically ill people and their relatives in Germany. It was founded on October 5, 1967 under the name of the Federal Working Group on Help for the Disabled and now represents over a million people.
The BAG Selbsthilfe is a member of the German Disability Council .
Board
Since 2017 Hannelore Loskill has been the chairwoman and u. a. Patient representative in the Federal Joint Committee . The deputy chairpersons are Rolf Flathmann and Marion Rink. In addition to the treasurer Joachim Baltes , Birgit Dembski, Verena Gotzes, Hubert Seiter, Barbara Kleinow and Renate Pfeifer belong to the board.
The work of the board is supported by an office based in Düsseldorf under the direction of federal manager Martin Danner.
Goals and general activity
In the embodiment of the welfare state requirement of the Basic Law , the BAG self-help advocates unrestricted integration and participation with the aim of legal and actual equality of disabled and chronically ill people. Relevant principles are self-determination and self-representation, which the association seeks to achieve by participating in socio-political bodies and by exerting influence at all state levels as well as by educating and informing the public for disabled and chronically ill people.
As the umbrella organization for self-help in health, the BAG Selbsthilfe coordinates the sending of patient representatives to the Federal Joint Committee , the Institute for Quality and Efficiency in Health Care and the quality assurance bodies at the IQTig Institute.
Together with the Bertelsmann Foundation and umbrella organizations of the largest patient and consumer organizations, the BAG Selbsthilfe operates an internet portal called White List that provides understandable and verified information to help you find hospitals, doctors and nursing homes.
In the area of self-help, the Federal Working Group provides information for those affected, which ranges from finding contacts at health insurance companies and other institutions to presenting the relevant application procedures and forms. In numerous individual publications, the BAG Self-Help provides information about various illnesses and the legal situation of disabled people. In addition, the journal Selbsthilfe appears quarterly .
requirements
The association advocates the strengthening of collective and individual patient rights, for example with regard to an expansion of patient-side participation such as in the Federal Joint Committee and in the Institute for Quality and Efficiency in Health Care ; it also fundamentally supports the adoption of a patient rights law, as presented by the Federal Government's patient commissioner , Wolfgang Zöller (CSU), in March 2011.
In addition, the association calls for the expansion of the 80 chronic diseases included in the risk structure compensation of the health insurance companies to 200 to 300 as well as clearer legal regulations regarding the reimbursement of costs by the health insurance companies for both drugs and medical aids in the interests of the chronically ill and the disabled. The BAG Self-Help is critical of the co-payment regulation for chronically ill and disabled people with low incomes and calls for a health reform that is fundamentally less oriented towards acute illness and a reform of long-term care insurance that is geared towards the needs of the chronically ill.
In the area of disability policy, the association is primarily committed to the implementation of the UN Convention on the Rights of Persons with Disabilities , which was ratified on March 26, 2009 , by publishing its demand together with the German Disability Council and actively contributing to the creation of the for April 2011 announced action plan of the federal government in the corresponding committees of the federal government's disability commissioner , Hubert Hüppe , and the responsible Federal Ministry of Labor and Social Affairs .
In addition, the BAG Selbsthilfe advocates a further improvement of the rehabilitation law within the framework of SGB IX as well as the planned reform of integration assistance for people with disabilities.
Reporting office for digital barriers
The BAG Selbsthilfe has been running a reporting office for digital barriers since 2006. This is where people can turn to for whom websites , online documents, software and information and service terminals (e.g. ATMs ) are not barrier-free . The registration office gets in touch with the providers of the digital offers and tries to remove the barriers. In addition, the detector is informed about the progress of the barrier message.
Web links
Individual evidence
- ^ White list. Health providers at a glance. Retrieved March 23, 2011 .
- ↑ See Philipp Neumann: More rights for patients . In: Die Welt , March 23, 2011, p. 9; Federal Government Patient Commissioner. Retrieved March 24, 2011 .
- ^ DBR: Demands of the German Disability Council for a national action plan to implement the UN Disability Rights Convention. (PDF; 591 kB) February 22, 2010, accessed on March 24, 2011 .
- ↑ Reporting office for digital barriers. Retrieved July 24, 2015 .