Rupprecht Thorbecke

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Hans Rup (p) right Thorbecke (born November 5, 1943 in Leipzig ) is a German medical sociologist with special epilepsy expertise.

Life

From 1964 to 1966 Thorbecke first studied medicine in Freiburg and Berlin, then after completing the preliminary physics from 1967 to 1972 to study sociology, economics and psychology in Munich and Konstanz (master’s degree). From 1972 to 1975 he was a member of Frieder Naschold's public health research group at the University of Konstanz , where he participated in studies on the influence of environmental conditions on heart disease and in his first publications.

From 1975 to 1990 he was a research assistant at the Department of Neurology at the Free University of Berlin , Klinikum Charlottenburg (with Dieter Janz ).

From 1990 to 2007 Thorbecke was head of the “Department for General Rehabilitation” at the Mara Clinic of the Bethel Epilepsy Center (with Peter Wolf , who had previously moved from Berlin to Bielefeld) and from 1997 to 2007 together with the neurologist, psychiatrist, epileptologist and Rehabilitation physician Ulrich Specht head of the newly established clinical department for epilepsy rehabilitation.

He has been officially retired since 2008 (Ingrid Coban was his successor), but is still active.

Work and writings

During his time in Berlin, Thorbecke a. a. In 1977, together with patients and doctors, the first epilepsy self-help group (SHG) was founded in Germany. In 1978, together with this SHG, he founded the magazine “einfalls”, which has since developed into the national platform for the development of self-help in the field of epilepsy and in which he also wrote numerous articles. Between 1977 and 1990 he was also involved in many evolving epilepsy self-help activities at the national level, including a. in the founding of the umbrella organization "German Epilepsy Association" (DE) and the organization of annual meetings. From 1982 he was together with Gisela Schüler co-organizer of the biennial workshops “Social Work in Epilepsy” and co-editor of the corresponding volumes of reports.

In Bielefeld-Bethel Thorbecke u. a. significantly involved in the development of rehabilitation concepts for patients with epilepsy, including those following epilepsy surgery. Together with Theo May and Margret Pfäfflin , he developed research instruments for assessing the psychosocial situation and quality of life in epilepsy.

Since the 1980s Thorbecke has also been a member of a joint working group for the professional rehabilitation of people with epilepsy of the German Society for Epileptology, representatives of the statutory accident insurance and occupational physicians of large companies. The corresponding recommendations are updated regularly and are now also a legal standard.

Thorbecke was also a member of the management group for the patient training program MOSES and (co-) author of the program (1st edition 1998, 2nd edition 2005). From 1998 to 2015, together with Dieter Dennig, he was responsible for adapting the program in non-German-speaking countries (Japan, Lithuania, Czech Republic, United Kingdom).

Another scientific focus was compliance research. Thorbecke's further activities at national and international level existed and still exist. a. in:

  • 1985 Member of the Scientific Committee of the 16th International Epilepsy Congress in Hamburg with responsibility for the topic of self-help including international cooperation
  • 1987 Member of the organizing committee of the first international epilepsy self-help workshop in Heeze, Netherlands
  • 1979–2000 member of the German Epilepsy Board of Trustees and co-author of the first (1985) and second (1998) German epilepsy report (responsible for the psychosocial aspects) as well as development of the concept of the “Information Center Epilepsy” (IZE), which began its work in 1991
  • 1986–91 member of the first “Employment Commission” of the International Bureau for Epilepsy (IBE) with (co-) authorship of publications
  • Member of other IBE commissions such as “Epilepsy, Risks and Insurance” also as a co-organizer of 2 workshops, co-author of several publications (one in the Epilepsy - center Bethel) and co-author of several publications.
  • since 1995 board member of the Michael Foundation with (co-) authorship of several brochures and publications of the foundation

Books and brochures

In addition to numerous publications in specialist journals, Thorbecke is also the (co-) author or (co-) editor of 21 books and brochures to date:

  • Steinmeyer HD, Thorbecke R. Legal issues in epilepsy (writings on epilepsy, Volume I). Hamburg, Michael Foundation 1983; last edition: Steinmeyer HD, Thorbecke R. Legal issues in epilepsy (writings on epilepsy, Volume I). 6th edition. Hamburg, Michael Foundation 2003; continued as: Thorbecke R, François R. Legal issues in epilepsy. Kindergarten and school education, training and work. Bonn - Bielefeld, Michael Foundation in cooperation with Bethel-Verlag 2017
  • Epilepsy Board of Trustees, Eds. (Janz D, Penin H , Scheidemann KF, Thorbecke R). Epilepsy Report '85. Cologne, Rheinland-Verlag 1985
  • Kreiling A, pupil G, Thorbecke R, ed. Social work in epilepsy 2. Bonn, Michael Foundation 1985
  • Brulleman B, Lieb-Jückstock V, Loeber JN, Thorbecke R, eds. Report of the International Workshop for Patient Organizations and Self-help Groups, Heeze, The Netherlands, 1987. Heemsteede, Netherlands, International Bureau for Epilepsy 1989; German edition: Brulleman B, Lieb-Jückstock V, Loeber JN, Thorbecke R. Self-help with epilepsy, Amsterdam, International Bureau for Epilepsy 1988
  • Troxell J, Thorbecke R. Vocational Scenarios: A Training Manual on Epilepsy and Employment. Heemstede, The International Bureau for Epilepsy 1992
  • Cornaggia CM, Beghi E, Hauser AW, Loeber JN, Sonnen AEH, Thorbecke R, eds. Epilepsy and Risks: A First-Step Evaluation. Milan, Ghedini Editore 1993; second edition: Cornaggia CM, Beghi E, Loeber JN, Hauser AW, Sonnen AEH, Thorbecke R, eds. Epilepsy and Risks: A First-Step Evaluation. 2nd edition. Heemstede, International Bureau for Epilepsy 1995
  • Student G, Thorbecke R, ed. Social work in epilepsy 3. Bielefeld / Bethel 1993. Hamburg, Michael Foundation 1994
  • Occupational Medicine Committee of the HVBG, ZH 1/191 (in charge: Thorbeke R). Recommendations for assessing career opportunities for people with epilepsy. Cologne, C. Heymanns 1996; Current edition: Committee for Occupational Medicine of the Employer's Liability Insurance Center for Safety and Health (BGZ) of the Main Association of Commercial Employer's Liability Insurance Association (HVBG), publisher. Employer's liability insurance association information for safety and health at work. BG information 585: Recommendations for assessing professional opportunities for people with epilepsy. Cologne, C. Heymanns 2007; available on the Internet at www.arbeitssicherheit.de
  • Student G, Jacob V, Thorbecke R, ed. Social work in epilepsy 4. Cottbus 1996. Berlin, Verlag einfallen 1997
  • Heinemann U, Rating D, Thorbecke R, Wolf P (Epilepsie-Kuratorium), ed. Epilepsie -bericht '98. Berlin, publishing house ideas 1998
  • Ried S, Göck K, Specht U, Thorbecke R, Wohlfahrt R, Broeker H, Heinen G, Lang M, Lenders T, Rating D, Reith H, Schmid-Schönbein C, Student G, Student P, Schultner R, Schuster U, Schwager HJ, Stephani U, Stodieck S. Living with epilepsy. Er-workbook for MOSES - modular training program for epilepsy. Berlin - Vienna, Blackwell Wissenschafts-Verlag 1998; Current edition: Baier H, Dennig D, Geiger-Riess M, Kerling F, Specht U, Thorbecke R. MOSES - development book. Modular epilepsy training program. 3rd, revised edition. Bielefeld, Bethel-Verlag 2014
  • Beghi E, Cornaggia CM, chairman, de Boer H, Hauser AW, Sonnen AEH, Thorbecke R (Commission on Epilepsy, Risks, and Insurance, International Bureau for Epilepsy). Risks in Epilepsy: Questions concerning Insurability. Heemstede, International Bureau for Epilepsy 1998, ISBN 90-74180-12-4
  • Student G, Thorbecke R, ed. Social work in epilepsy 5. Kleinwachau 1998. Berlin, Verlag einfallen 1999
  • Pfäfflin M, Fraser RT, Thorbecke R, et al., Eds. Comprehensive Care for People with Epilepsy (Current Problems in Epilepsy, Vol 16). Eastleigh, J. Libbey 2001
  • Wolf P, Mayer T, Specht U, Thorbecke R, Boenigk HE, Pfäfflin M, ed. Praxisbuch Epilepsien. Diagnostics - treatment - rehabilitation. Stuttgart, W. Kohlhammer 2003
  • Coban I, Thorbecke R, on behalf of Sozialarbeit bei Epilepsie eV, Ed. Sozialarbeit bei Epilepsie 10. Bethel 2008. Bielefeld, Bethel-Verlag 2009
  • Krämer G, Thorbecke R, Porschen T. Epilepsy and driver's license. Legal regulations; Current assessment guidelines and instructions for use; Tasks, duties and rights of doctors, duties and rights of patients, mobility aids for people who are not fit to drive and tips for everyday life. Bad Honnef, Hippocampus 2011
  • Dröge C, Thorbecke R, Brandt C, with expert advice from Coban I, Francois R, Pannek H, et al. Exercise in Epilepsy (Epilepsy Writings, Volume V). Hamburg, Michael Foundation 2011 (2nd edition 2017); available on the Internet at http://www.stiftungmichael.de
  • Coban I, Thorbecke R, on behalf of Sozialarbeit bei Epilepsie eV, Ed. Sozialarbeit bei Epilepsie 11. Ravensburg 2010. Bielefeld, Bethel-Verlag 2011
  • Coban I, Thorbecke R. Mobility aids in epilepsy. Michael Foundation Information on Epilepsy. Bonn, Michael Foundation 2012 (2nd edition 2016)
  • Coban I, Lippold M, Thorbecke R, on behalf of Sozialarbeit bei Epilepsie eV, Ed. Sozialarbeit bei Epilepsie 12. Kleinwachau 2012. Bielefeld, Bethel-Verlag 2013
  • Pfäfflin M. Wohlfahrt R, Thorbecke R. Address epilepsy (Foundation Michael Information on Epilepsy). Bonn, Michael Foundation in cooperation with Bethel Verlag 2015

Awards

  • 1989: "Ambassador for Epilepsy" by the ILAE and the IBE
  • 2007: Honorary membership of the German Society for Epileptology
  • 2007: Federal Cross of Merit on ribbon

Individual evidence

  1. ↑ Specht U, Thorbecke R. Epilepsies. In: Frommelt P, Grötzbach H, ed. Neurorehabilitation. Berlin, Blackwell 1998: 452-465
  2. ↑ Thorbecke R, Hötger B. Postsurgical rehabilitation. In: Lüders HO, ed. Textbook of Epilepsy Surgery. London, Informa Healthcare 2008: 1319-1328
  3. ↑ Thorbecke R, Fraser RT. The range of needs and services in vocational rehabilitation. In: Engel J Jr, Pedley TA, eds, Aicardi J, Poet MA, Perucca E, et al., Assoc eds. Epilepsy. A Comprehensive Textbook. Second edition. Three volumes. Philadelphia - Baltimore - London, et al., Wolters Kluwer Health / Lippincott Williams & Wilkins 2008: 2253-2265
  4. ↑ Thorbecke R, May TW, Koch-Stoecker S, Ebner A, Bien CG, Specht U., Effects of an inpatient rehabilitation program after temporal lobe epilepsy surgery and other factors on employment 2 years after epilepsy surgery. Epilepsia 2014; 55: 725-733
  5. ↑ May TW, Pfäfflin M, Evaluation comprehensive care: Description of the PESOS and its psychometric properties. In: Pfäfflin M, Fraser RT, Thorbecke R, et al., Eds. Comprehensive Care for People with Epilepsy (Current Problems in Epilepsy, Vol 16). Eastleigh, J. Libbey 2001: 319-340
  6. ↑ Thorbecke R, Specht U. Occupational rehabilitation for epilepsy. The Medical Expert 2005; 101: 22-32
  7. ^ Committee of Occupational Medicine of the HVBG, ZH 1/191 (in charge: Thorbeke R). Recommendations for assessing career opportunities for people with epilepsy. Cologne, C. Heymanns 1996; Current edition: Committee for Occupational Medicine of the Employer's Liability Insurance Center for Safety and Health (BGZ) of the Main Association of Commercial Employer's Liability Insurance Association (HVBG), publisher. Employer's liability insurance association information for safety and health at work. BG information 585: Recommendations for assessing professional opportunities for people with epilepsy. Cologne, C. Heymanns 2007; available on the Internet at www.arbeitssicherheit.de
personal data
SURNAME Thorbecke, Rupprecht
ALTERNATIVE NAMES Thorbecke, Ruprecht
BRIEF DESCRIPTION German medical sociologist with special epilepsy expertise
DATE OF BIRTH November 5, 1943
PLACE OF BIRTH Leipzig