Michael Foundation

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The Michael Foundation (full name: Michael Foundation for Research and Combat of Seizure Diseases and their Individual and Social Consequences ) is a non-profit foundation based in Bonn .

Foundation work

One focus of the work is research into the causes of epilepsy and its therapy, as well as the promotion of people and institutions that carry out this research. In addition, associations such as the Epilepsy Board of Trustees and the Epilepsy Information Center (IZE), which were established by the foundation, were operated. The IZE has now been integrated into the German Society for Epileptology (DGfE).

Epilepsy bulletins

The foundation publishes information leaflets on various aspects of epilepsy, which are aimed at those affected as well as those providing advice and treatment.

The following fonts are currently available:

  • R. Thorbecke, R. François: Legal issues with epilepsy Legal aspects for people with epilepsy in kindergarten, school, training and work. (= Foundation Michael information on epilepsy ). In cooperation with the Bethel publishing house. Michael Foundation, Bonn 2017, ISBN 978-3-935972-49-9 . (previously: H.-D. Steinmeyer, R. Thorbecke: Legal issues in epilepsy. )
  • I. Coban, A. Hauser: Social help for children, adolescents with epilepsy and their parents. (= Writings on epilepsy. Volume II). Michael Foundation, Hamburg 2011.
  • RA Sälke-Kellermann: Epilepsy in school children. (= Writings on epilepsy. Volume IV). 2nd Edition. Michael Foundation, Hamburg 2017.
  • C. Dröge, R. Thorbecke, C. Brandt, with expert advice from I. Coban, R. Francois, H. Pannek, U. Specht, L. Worms: Sport in Epilepsy. (= Writings on epilepsy. Volume V). 2nd Edition. Michael Foundation, Hamburg 2017.
  • D. Janz, T. Pung, R. Khatami: Juvenile myoclonic epilepsy. Janz syndrome. Conversations with patients. (= Writings on epilepsy. Volume VI). Michael Foundation, Hamburg 2012.
  • I. Coban, R. Thorbecke: Mobility aids in epilepsy. Michael Foundation, Bonn 2012.
  • M. Pfäfflin, R. Wohlfahrt, R. Thorbecke: addressing epilepsy. (= Foundation Michael information on epilepsy ). 2nd Edition. Michael Foundation in cooperation with Bethel-Verlag, Bonn 2016.
  • NEST: Non-Epileptic Seizures Treatment Group (Reuber M, House A, Brown R, Howlett S): Psychogenic Non-Epileptic Seizures. Information for patients, relatives and health professionals. In cooperation with the Bethel publishing house. Michael Foundation, Bonn 2017.
  • H. Fischbach, G. von Ondarza: Epilepsy and family. In: Cooperation with Bethel-Verlag, Michael Foundation, Bonn 2017.

Promotion of further education and training

Michael Debate

The Michael Debate ( English Michael Debate ) is a scientific contribution of the foundation to the biennial European Epilepsy Congress. A group of researchers - mostly recipients of the Michael Prize - discusses a current topic first among themselves and then with the audience.

“Practical seminar for epilepsy” in Gargnano on Lake Garda, Italy

Every year since 1989, the foundation has held a two-and-a-half-day seminar on medical training in epileptology in Gargnano .

Conference "Social Work in Epilepsy"

The foundation supports this conference, which is organized every two years by the association “Sozialarbeit bei Epilepsie eV”.

Scholarships

Focused Fellowship Scholarships

Since 2014, the foundation has supported a “Department to Department Co-Operation Project” of the European Federation of Neurological Sciences (now: European Academy of Neurology ; EAN) -oriented fellowship program, which enables young doctors and young researchers to spend at least six weeks with Germans To attend centers and learn previously defined methods or techniques or take part in research projects. For the time being, applications from European countries are preferred.

VIREPA grants

The foundation provides funds to enable a limited number of mainly younger participants from Germany and other European countries to take part in VIREPA distance learning (= Virtual Epilepsy Academy of the International League Against Epilepsy ; ILAE) if they pay the full course fees can not muster.

Gargnano Scholarships

Since 2014, the foundation has been awarding up to five scholarships to doctors up to the age of 32 for participation in the practical seminars in Gargnano. The participation fee will be waived for scholarship holders and they will receive free board and lodging at Villa Feltrinelli .

Scholarships for advanced training in epilepsy specialist assistance / advice

For several years now, the foundation has been awarding advanced training for “epilepsy specialist assistance” and “epilepsy specialist counseling”, which was developed by the Institute for Education and Counseling at the Bethel Epilepsy Center in cooperation with the German Society for Epileptology and at the Education and Counseling Department of the Bethel Epilepsy Center is carried out. This funding opportunity is aimed at specialists in the social and health sector in the fields of nursing, functional services, therapeutic services, specialist medical practice, pedagogy, social work and psychology

Prices

Michael Prize

Since 1963, important, initially German-language and now international scientific works in the field of epilepsy have been awarded the Michael Prize by the foundation . The prize is awarded every two years at the International Epilepsy Congress. The previous winners are:

  • 2017 Boris C. Bernhardt, Germany / Canada
  • 2015 Jeanne Paz, France
  • 2013 Ding Ding, China
  • 2011 Eleonora Aronica, Netherlands
  • 2009 Hrissanthi Ikonomidou, Germany; Ivan Soltesz, USA
  • 2007 Christophe Bernard, France; Alon Friedman, Israel
  • 2005 József Janszky, Hungary; Heidrun Potschka , Germany
  • 2003 Rüdiger Köhling , Germany
  • 2001 Matthias Koepp, England; Friedrich G. Wörmann, Germany
  • 1999 Heinz Beck, Germany; Marco de Curtis, Italy; Istvan Mody, USA
  • 1997 Thomas Sander, Germany; Gertrud Beck-Mannagetta, Germany; Ortrud Steinlein, Germany
  • 1995 Massimo Avoli, Canada
  • 1993 Wolfgang Löscher, Dagmar A. Hönack and Chris Rundfeldt, Germany
  • 1991 Michael M. Segal, USA
  • 1989 Gregory L. Holmes, USA; Eli M. Mizrahi, USA
  • 1987 Charles E. Ribak, USA; Arthur Könnerth, Germany; Uwe Heinemann , Germany; Yoel Yaari, Israel; Lechoslaw Turski, Germany; Waldemar A. Turski, Poland; Esper A. Cavalheiro, Brazil
  • 1984 Solomon L. (“Nico”) Moshé, USA; Jeffrey L. Noebels, USA;
  • 1983 Christian E. Elger , Germany; George Kostopoulos, Greece
  • 1982 Jerome Engel Jr, USA
  • 1980/81 Colin D. Binnie, England; Brian S. Meldrum, England
  • 1979 Pierre Gloor , Canada; Otto Creutzfeldt , Germany
  • 1978 Hellmuth Petsche, Austria; Alan Richens, England
  • 1977 Hans Dieter Lux and Uwe Heinemann , Germany
  • 1976 no awards
  • 1975 Gerhard S. Barolin, Erich Scherzer and Gernot Schnabert, Austria; Cordula Nitsch, Switzerland
  • 1974 Wolfgang Ehrengut, Germany; Helmut Heintel, Germany
  • 1973 Heinz Caspers and Erwin-Josef Speckmann , Germany
  • 1972 Rudolf Dreyer , Germany
  • 1971 Ansgar Matthes , Germany
  • 1970 Gerhard Veith, Germany
  • 1969 Gerhard Schorsch , Germany
  • 1968 Dieter Janz , Germany
  • 1967 Gerhard Koch, Germany; Alfred Leder, Switzerland
  • 1966 Rolf Kruse , Germany
  • 1965 Friedrich Vogel, Germany; Heinz Häfner , Germany; Klaus Diebold, Germany; Hubertus Tellenbach , Germany; Uroš Jovanović, Germany
  • 1964 Leonie Stollreiter, Germany
  • 1963 Hermann Doose , Germany; Jürgen Peiffer , Germany

Sibylle Ried Prize

Since 2001, the foundation has awarded the Sibylle Ried Prize , named after the early deceased German neurologist, psychiatrist and epileptologist Sibylle Ried (1956–2000), every two years , which honors people and organizations in German-speaking countries who work in the field are active in epilepsy. The prize is awarded every two years at the joint annual meeting of the German-speaking specialist societies for epilepsy ( German Society for Epileptology , Austrian Society for Epileptology , Swiss Epilepsy League ). The previous winners are:

  • 2017 Bernd Huber
  • 2015 Marion Witt and Hans König
  • 2013 Kristin Fahrtmann for the association Youth on the Move Germany eV
  • 2011 Gerd Heinen and Silke Kirschning as well as Mechthild Katzorke and Volker Schöwerling
  • 2009 Susanne Rudolph and her team of authors
  • 2007 Susanne Rinnert and the famous project team
  • 2005 Hansjörg Schneble and Hans-Martin Schneble ( German Epilepsy Museum Cork )
  • 2003 self-help magazine ideas
  • 2001 Margret Pfäfflin and Theodor W. May

history

The founder was the journalist and publisher Fritz Harzendorf (1888–1964). His son Michael, who had suffered from severe epileptic seizures since childhood, was treated by Dieter Janz at the Heidelberg University Hospital at the age of 15 . After a successful therapy with which the seizures were treated, Fritz Harzendorf planned to set up an epilepsy foundation. With the support and advice of Janz, the Michael Foundation was founded on July 11, 1962 and named after Harzendorf's son. Dieter Janz has accompanied the work of the foundation from the start and has been a member of the foundation board since 1962.

Board of Directors and Board of Trustees

The board of directors is Heinz Bühler (husband of daughter Agatha von Fritz Harzendorf), chairwoman of the board of trustees is Bettina Schmitz (Berlin).

literature

Web links

Individual evidence

  1. ^ Günter Krämer: The great TRIAS manual epilepsy . Georg Thieme Verlag, Stuttgart 2005, ISBN 3-8304-3129-5 , p. 402 f . ( limited preview in Google Book search).
  2. ↑ Bernhard Stier, Nicolaus Weissenrieder: Youth Medicine - Health and Society . Springer Medizin Verlag, Heidelberg 2006, ISBN 3-540-21483-6 , p. 184 ( limited preview in Google Book search).
  3. ↑ The Michael Prize. Michael Foundation, accessed on August 21, 2017 .
  4. ↑ Sibylle Ried Prize . In: epiKurier . Issue 4/2006 ( epikurier.de [accessed on August 21, 2017]).
  5. ↑ stiftungmichael.de
  6. ↑ 50 years of history in brief bullet points. Michael Foundation, accessed on August 21, 2017 .
  7. ↑ Dagmar Drüll: Heidelberger Gelehrtenlexikon 1933–1986 . Springer-Verlag, Berlin / Heidelberg 2009, ISBN 978-3-540-88835-2 , p. 306 f . ( limited preview in Google Book search).