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{{Short description|U.S. nonprofit organization}}
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{{Redirect|OCRA|the font|OCR-A}}
{{afc comment|1=Article has many promotional text, a neutral tone is ideal for an article about an organization. [[User:EuroCarGT|<font color="cyan">'''///Euro'''</font><font color="grey">'''Car'''</font>]][[User talk:EuroCarGT|<font color="orange">'''GT'''</font>]] 04:11, 19 January 2014 (UTC)}}
{{Infobox organization

| name = Ovarian Cancer Research Alliance
----
| image =

| founder = Sol Schreiber
{{Infobox non-profit
| type = Nonprofit Organization / NGO
| name = Ovarian Cancer Research Fund
| founded_date = 1994
| image =
| location = New York, New York
| founder = Sol Schreiber
| key_people = Audra Moran, President & CEO<br />Robin S. Cohen, Vice President<br />John W. Hansbury, Esq., Chair<br />Tom Liebman, Director<br />Dana L. Mark, Esq., Secretary<br />Matthew Neal Miller, Director<br />Mark Tessar, CPA, CIA, Treasurer
| type = Nonprofit Organization / NGO
| services = Charitable services
| founded_date = 1994
| focus = Ovarian cancer research
| location = New York, NY
| former name = Ann Schreiber Ovarian Cancer Research Fund, Ovarian Cancer Research Fund, Ovarian Cancer National Alliance, Ovarian Cancer Research Fund Alliance
| key_people = Audra Moran, CEO<br> John W. Hansbury, Esq., Co-President<br> Sherry Jacobson, Co-President<br>Sol Schreiber, Esq., Founder and Chair<br>Carmel J. Cohen, M.D., Scientific Chair<br>Edward Labaton, Esq., Secretary<br>Jacqueline Bianco, Treasurer<br>Mindy Gray, Director<br>Donna Nadler, Director<br>Susan Yoss, Director
| homepage = {{URL|https://ocrahope.org}}|
| services = Charitable services
| focus = Ovarian cancer research
| mission = To fund scientific research that leads to more effective identification, treatment, and ultimately a cure for ovarian cancer, as well as related educational and support initiatives.
| motto = Together, we can change the future.
| former name = Ann Schreiber Ovarian Cancer Research Fund
| homepage = http://www.ocrf.org|www.ocrf.org}
}}
}}


'''Ovarian Cancer Research Alliance (OCRA)''' is a not-for-profit organization focused on [[ovarian cancer]] research, advocacy and patient support.<ref name=":0">{{Cite web|url=https://www.guidestar.org/profile/13-3806788|title=Ovarian Cancer Research Alliance - GuideStar Profile|website=www.guidestar.org|language=en|access-date=2018-12-06}}</ref> The organization was formed in January 2016 when the former not-for-profit organization [[Ovarian Cancer Research Fund]], which focused primarily on ovarian cancer research, combined with [[Ovarian Cancer National Alliance]], which focused primarily on ovarian cancer advocacy and support programs, to form one organization.<ref name=":0" />
== Overview ==


== History ==
'''Ovarian Cancer Research Fund (OCRF)''' was founded in December, 1994, as the Ann Schreiber Ovarian Cancer Research Fund by Sol Schreiber in memory of his wife, Ann, who died of [[ovarian cancer]]. The organization later became the Ovarian Cancer Research Fund. In 1997, [[Liz Tilberis]], editor-in-chief of [[Harpers Bazaar]] and also battling ovarian cancer,<ref>[http://www.harpersbazaar.com/beauty/health-wellness-articles/barack-obama-ovarian-cancer "Ovarian Cancer: Fighting for a Cure,"] Harper's Bazaar, June 3, 2009</ref> became the organization’s first president. Liz, with help from [[Donna Karan]], started OCRF’s signature fundraiser, Super Saturday, hosting the first one in 1998 in the Hamptons in New York. The first Super Saturday raised $200,000, and today raises over $3.5 million annually.<ref>[http://www.nytimes.com/2012/07/26/fashion/super-saturday-tag-sale-is-turning-15.html "A Super Size Tag Sale is Turning 15,"] The New York Times, Fashion & Style, July 26, 2012, p. E6</ref>
The former Ovarian Cancer Research Fund (OCRF) was founded in December 1994, as the Ann Schreiber Ovarian Cancer Research Fund by Sol Schreiber in memory of his wife, Ann, who died of [[ovarian cancer]]. The organization later became the Ovarian Cancer Research Fund. In 1997, [[Liz Tilberis]], editor-in-chief of ''[[Harper's Bazaar]]'' and also battling ovarian cancer,<ref>{{Cite web|url=https://www.harpersbazaar.com/beauty/health-wellness-articles/barack-obama-ovarian-cancer|title=Ovarian Cancer: Fighting for a Cure|last=Lennon|first=Christine|date=2009-06-03|website=Harper's BAZAAR|language=en-US|access-date=2018-12-06}}</ref> became the organization's first president. Tilberis, with help from [[Donna Karan]], started the organization's signature fundraiser, Super Saturday, hosting the first one in 1998 in the Hamptons in New York. Prior to becoming Ovarian Cancer Research Fund Alliance, Ovarian Cancer Research Fund was the oldest and largest charity in the United States funding ovarian cancer research.<ref>{{Cite web|url=http://www.eurekalert.org/pub_releases/2015-04/eif-nsu041715.php|title=New Stand Up To Cancer-OCRF-OCNA-NOCC Ovarian Cancer Dream Team announced|website=EurekAlert!|language=en|access-date=2018-12-06}}</ref>
OCRF is now the oldest and largest charity in the U.S. funding ovarian cancer research.<ref>[http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=8037#.Up-IOWRDtuI Charity Navigator]</ref> OCRF has awarded over $50 million in research through grants to scientists at 63 medical centers in 29 states and Washington, D.C. OCRF launched a patient program in 2012, called [[#Woman to Woman|Woman to Woman]], for women undergoing treatment for any type of gynecologic cancer. OCRF is governed by a Board of Directors.

The former Ovarian Cancer National Alliance (OCNA) was founded in 1997 by the leaders of several ovarian cancer organizations.<ref>{{Cite web|url=https://mavendoctors.io/cancerconnect/ovarian-cancer/ovarian-cancer-national-alliance-1bsLOQzIQE68JD2FozdB2g/|title=Ovarian Cancer National Alliance|website=Cancer Connect|language=en|access-date=2018-12-06}}</ref> Prior to becoming the eventual merge of the two organizations, OCNA was a leading ovarian cancer organization in the United States focusing on federal advocacy, awareness and patient support programs.<ref>{{Cite web|url=http://smrfteal.org/about-ovarian-cancer/resources/|title=Resources - Susan Marie Rupp Foundation|date=20 July 2013}}</ref>


The majority of ovarian cancer research funding in the United States comes from two government sources—the [[National Cancer Institute]] and [[United States Department of Defense]]. OCRF is the largest non-governmental funding source of ovarian cancer research,<ref>[http://www.ocrf.org/ovarian-cancer-research-funding-in-the-united-states Ovarian Cancer Research Funding in the United States: Ovarian Cancer Research Fund]</ref>. OCRF research grants are approved by a committee comprised of gynecologic oncologists and scientists treating and/or studying ovarian cancer.<ref>[http://www.research-europe.com/index.php/2013/08/audra-moran-ceo-and-john-w-hansbury-board-co-president-ovarian-cancer-research-fund Research Media Ltd.], August 28, 2013</ref>
== Research ==
== Research ==


As of December 2018, since inception of the original organization, OCRA has awarded 297 research grants to scientists at 73 medical institutions, totaling over $80 million.<ref>{{Cite web|url=https://www.fredhutch.org/en/news/center-news/2018/01/golide-lui-funding-ovarian-cancer-research-alliance.html|title=Good News at Fred Hutch|date=25 January 2018}}</ref>
Through grantmaking programs, OCRF funds scientific research at cancer centers and academic research centers in the U.S. The first grants were awarded in 1998. OCRF offers three grants:<ref>[http://www.ocrf.org/research-grants Research and Grants: Ovarian Cancer Research Fund]</ref>
• Program Project Development Grant: OCRF’s largest grant ($900,000 over three years) is for senior investigators with established research careers, and provides funding for large ovarian cancer research projects that involve several investigators within one institution or collaborations between groups in multiple institutions. ($300,000 per year for three years)


The majority of ovarian cancer research funding in the United States comes from two government sources—the [[National Cancer Institute]]<ref>{{Cite web|url=https://www.cancer.gov/about-nci/budget/fact-book/data/research-funding|title=Research Funding|date=2018-02-16|website=National Cancer Institute|language=en|access-date=2018-12-06}}</ref> and [[United States Department of Defense]].<ref>{{Cite web|url=https://cdmrp.army.mil/ocrp/|title=Ovarian Cancer Research Program, Congressionally Directed Medical Research Programs|website=cdmrp.army.mil|access-date=2018-12-06}}</ref> OCRA is the largest non-governmental funding source of ovarian cancer research. OCRA research grants are approved by a committee of gynecologic oncologists and scientists treating or studying ovarian cancer.<ref>{{Cite web|url=http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=8037|title=Charity Navigator - Rating for Ovarian Cancer Research Fund Alliance|website=Charity Navigator|language=en|access-date=2018-12-06}}</ref>
• Liz Tilberis Early Career Award: This award is for junior faculty, and supports a time commitment to research and academic endeavors in ovarian cancer. ($150,000 per year for three years).


=== Grant-making programs ===
• Ann Schreiber Mentored Investigator Award: This award was created in 2003, and funds clinical fellows or post-doctoral fellows working under the supervision of a mentor who is considered a leader in the field of ovarian cancer research. ($75,000 over one or two years)
Through grant-making programs, OCRA funds scientific research at cancer centers and academic research centers in the U.S. The first grants were awarded in 1998. OCRFA offers three research grants:


* Collaborative Research Development Grant: OCRFA's largest grant ($900,000 over three years) is for senior investigators with established research careers, and provides funding for large ovarian cancer research projects that involve several investigators within one institution or collaborations between groups in multiple institutions.<ref>{{Cite web|url=https://research.weill.cornell.edu/funding/open-submission-grants/collaborative-research-development-grant-ovarian-cancer-research-fund|title=Collaborative Research Development Grant - Ovarian Cancer Research Fund Alliance {{!}} Research {{!}} Weill Cornell Medicine}}</ref> ($300,000 per year for three years)
OCRF selects research projects through a peer-review process, conducted once each year by a panel of advisors called the Scientific Advisory Committee (SAC), which is chaired by Jeff Boyd, Ph.D., of Fox Chase Cancer Center.
* Liz Tilberis Early Career Award: This award is for junior faculty, and supports a time commitment to research and academic endeavors in ovarian cancer.<ref>{{Cite web|url=https://www.vai.org/press-release-11-18-2015/|title=Van Andel Research Institute's Hui Shen receives ovarian cancer research award|date=2015-11-18|website=VAI|language=en-US|access-date=2018-12-06}}</ref> ($150,000 per year for three years).
* Ann and Sol Schreiber Mentored Investigator Award: This award was created in 2003, and funds clinical fellows or post-doctoral fellows working under the supervision of a mentor who is considered a leader in the field of ovarian cancer research.<ref>{{Cite web|url=http://www.hi.umn.edu/press/new-researcher-at-the-hormel-institute-awarded-ovarian-cancer-research-grant/|title=New Researcher at The Hormel Institute Awarded Ovarian Cancer Research Grant|last=admin|website=The Hormel Institute|language=en-US|access-date=2018-12-06}}</ref> ($75,000 over one or two years)
*Rosalind Franklin Prize for Excellence in Ovarian Cancer Research: This annual award was introduced in 2005 in honour of [[Rosalind Franklin]], discoverer of key chemical properties for the correct description of the [[Nucleic acid double helix|structure of DNA]] and died of ovarian cancer in 1958.<ref>{{Cite web|title=OCRA National Conference Awards & Prizes|url=https://ocrahope.org/events/conference/awards-prizes/|access-date=2021-05-17|website=OCRA|language=en-US}}</ref>


OCRA selects research projects through a peer-review process, conducted once each year by a panel of advisors called the Scientific Advisory Committee, which is chaired by Jeff Boyd of the Florida International University and Miami Cancer Institute.<ref>{{Cite web|url=https://newsroom.baptisthealth.net/press-release/miami-cancer-institute-names-jeff-boyd-ph-d-director-of-translational-research-and-genomic-medicine/|title=Miami Cancer Institute Names Jeff Boyd, PH.D., Director of Translational Research and Genomic Medicine|date=14 January 2016}}</ref>
Less than 10% of applicants are awarded grants. Institutions that have received the most grants include [[University of Texas MD Anderson Cancer Center]], [[University of Pennsylvania]], [[Fox Chase Cancer Center]], [[Duke University]], and [[Brigham and Women’s Hospital]].


Less than 10% of applicants are awarded grants. Institutions that have received the most grants include [[University of Texas MD Anderson Cancer Center]], [[University of Pennsylvania]], [[Fox Chase Cancer Center]], [[Duke University]], and [[Brigham and Women’s Hospital|Brigham and Women's Hospital]].
OCRF presents an educational webinar series featuring speakers on topics in ovarian cancer research and addresses [[clinical trial]] enrollment with an ovarian cancer clinical trial finder on its website.<ref>[http://www.ocrf.org/about-ovarian-cancer/clinical-trials/find-a-clinical-trial Find a Clinical Trial: Ovarian Cancer Research Fund]</ref>
== Woman to Woman Program ==


OCRA presents an educational webinar series featuring speakers on topics in ovarian cancer research and addresses [[clinical trial]] enrollment with an ovarian cancer clinical trial finder on its website.<ref>{{Cite web|url=https://app.emergingmed.com/ocrfa/home|title=Emergingmed|website=app.emergingmed.com|access-date=2018-12-06}}</ref>
In 2011 OCRF began a national expansion of Woman to Woman,<ref>[http://www.ocrf.org/womantowoman Woman to Woman: Ovarian Cancer Research Fund]</ref> a local program originating at [[Mount Sinai Hospital]].<ref>[http://www.mountsinai.org/patient-care/service-areas/obgyn-and-reproductive-services/patient-support-services/womens-gynecologic-cancer-support/women-to-women-program Woman to Woman Program: Mount Sinai Hospital]</ref> This program pairs volunteer gynecologic cancer survivors with women recently diagnosed and actively going through treatment, and offers information and support for caregivers.<ref>{{cite web| title = The OCRF Woman to Woman Program| publisher = A Woman's Health| url = http://awomanshealth.com/the-ocrf-woman-to-woman-program/| accessdate = March 17, 2014 }}</ref> With funding from [[QVC]], OCRF expanded the program nationally and established new Woman to Woman sites at [[NewYork-Presbyterian Hospital]], [[Duke Cancer Institute]], [[Yale–New Haven Hospital]], [[H. Lee Moffitt Cancer Center]], and [[Stanford University]].<ref>[http://www.prnewswire.com/news-releases/ovarian-cancer-research-fund-and-national-sponsor-qvc-expand-woman-to-woman-program-215074771.html PR Newswire] July 11, 2013</ref>
Woman to Woman program sites are selected through an application process. OCRF gives each selected institution a one-year, $50,000 grant to cover the cost of a part-time program coordinator, with remaining funds allotted to a patient fund. Newly established Woman to Woman programs are expected to become self-funding after the first year.


== Awareness and Support ==
== Advocacy ==
OCRA works with federal policy makers, including the President, Congress, and federal agencies like the [[Food and Drug Administration]] (FDA) and the [[Centers for Medicare and Medicaid Services]] (CMS). OCRA commits its resources to be a voice for ovarian cancer survivors and to significantly reduce the number of deaths from this deadly disease by advocating at the federal level<ref>{{Cite web|url=http://www.mioca.org/advocacy/articles/Contact-Your-Legislators-to-Request-Appropriate-Funding-for-FY2018|title=Michigan Ovarian Cancer Alliance Homepage|website=www.mioca.org|access-date=2018-12-06}}</ref> for:


* Adequate and sustained funding for ovarian cancer research and awareness programs.
The first OCRF ovarian cancer awareness broadcast and print public service announcements<ref name="Inc.2006">{{cite book|author=Rodale, Inc.|title=Women's Health|url=http://books.google.com/books?id=J8YDAAAAMBAJ&pg=PA49|date=April 2006|publisher=Rodale, Inc.|pages=49–|issn=08847355}}</ref> were created in partnership with [[L%27Oréal]] and featured [[Andie MacDowell]].<ref>[http://www.ispot.tv/ad/7YpI/the-ovarian-cancer-research-fund-featuring-andie-macdowell iSpot.tv], Ovarian Cancer Research Fund TV Spot Featuring Andie MacDowell</ref> Since then, OCRF has been included in print<ref>"The Big O," Prevention, September 2011, Catherine Winters, p.96-105</ref> and online publications, including books,<ref name="Cuomo2012">{{cite book|author=Margaret I. Cuomo|title=A World Without Cancer: The Making of a New Cure and the Real Promise of Prevention|url=http://books.google.com/books?id=PfI7HkBibUsC&pg=PA283|date=12 October 2012|publisher=Rodale|isbn=978-1-60961-886-5|pages=283–}}</ref> national and international magazines and local newspapers, as a resource for ovarian cancer information.
* Legislation that improves quality of life and access to care for cancer patients.<ref>{{Cite web|url=https://mnovarian.org/providing-education/|title=Providing Education {{!}} MOCA|website=mnovarian.org|access-date=2018-12-06}}</ref>


=== Advocacy Day ===
Contributions to public discourse on ovarian cancer in are done through various forums, including Letters to the Editor in [[The New York Times']],<ref>[http://www.nytimes.com/2012/09/21/opinion/doubt-about-ovarian-cancer-screening.html?_r=1& "Doubt About Ovarian Cancer Screening,"] The New York Times, The Opinion Pages, September 20, 2012</ref>.<ref>[http://www.nytimes.com/2013/03/21/opinion/ovarian-cancer.html?_r=0 "Ovarian Cancer,"] The New York Times, The Opinion Pages, March 20, 2013</ref>
Advocacy Day takes place on [[Capitol Hill]]. Ovarian cancer survivors meet one-on-one with elected officials to share their personal stories as well as ask for support on a number of federal efforts aimed at sustaining or increasing funding for federal ovarian cancer research, awareness and support.<ref>{{Cite web|url=http://www.ovariancancerosw.org/event-1831818|title=Ovarian Cancer Alliance of Oregon & SW Washington - Advocacy Day 2015 in Washington DC|website=www.ovariancancerosw.org|access-date=2018-12-06}}</ref>
OCRF hosts a yearly free webinar series for the public on topics related to ovarian cancer.<ref>[http://www.ocrf.org/news/research/new-ocrf-educational-webinar-series-available-2 Free Educational Webinar Series: Ovarian Cancer Research Fund]</ref> Support is provided by [[Genentech]].


== Support ==
In 2012, Ovarian Cancer Research Fund launched OCRF Team Hope and OCRF Team Hope Endurance,<ref>[http://www.ocrf.org/donatenow/team-hope-plan-an-event-or-fundraiser-for-ocrf OCRF Team Hope: Ovarian Cancer Research Fund]</ref> a program which allows supporters to plan and promote campaigns to raise ovarian cancer awareness and funds for research.
OCRA's support programs focus on helping women and their families before, during and beyond diagnosis.


=== Survivors Teaching Students: Saving Women's Lives ===
Ovarian Cancer Research Fund has four signature events. The earliest established, called Super Saturday, is an annual fundraiser held in Water Mill, New York. Super Saturday was founded in 1998 by fashion designer Donna Karan, and late OCRF President and Editor-In-Chief of Harper’s Bazaar, Liz Tilberis. It is dubbed the “Rolls-Royce of garage sales”<ref>[http://www.nytimes.com/2002/08/04/style/on-the-meadow-rolls-royce-of-garage-sales.html?n=Top%2fReference%2fTimes%20Topics%2fPeople%2fC%2fCunningham%2c%20Bill "On The Meadow: Rolls-Royce of Garage Sales,"] The New York Times, Style, August 4, 2002</ref> by The New York Times, and has been hosted by [[Kelly Ripa]] and sponsored by Donna Karan, QVC and [[InStyle]]. Super Saturday includes a "garage sale" of new designer products, a live on-site QVC broadcast, a children’s carnival, and other activities. In 2013, Super Saturday raised $3.5 million<ref>[http://www.ocrf.org/wp-content/uploads/WallStreetJournal-7.30.13.pdf "Shopping for a Cause, a Hamptons Tradition,"] The Wall Street Journal, Heard & Scene, July 30, 2013</ref> for Ovarian Cancer Research Fund.
Survivors Teaching Students: Saving Women's Lives aims to educate future healthcare professionals—physicians, [[nurse practitioners]], nurses and physician assistants—to increase their understanding of ovarian cancer symptoms and risk factors so that they will be able to diagnose the disease when it is in its earlier, most treatable stages.<ref>{{Cite web|url=https://mnovarian.org/providing-education/medical-education-initiatives/survivors-teaching-students/|title=Survivors Teaching Students® {{!}} MOCA|website=mnovarian.org|access-date=2018-12-06}}</ref>


=== Ovarian Cancer National Conference ===
The Legends Gala was sponsored for several years by L’Oréal Paris, and is held every other year. A 2011 Gala was held at the [[American Museum of Natural History]], and was hosted by [[Julianna Margulies]]. The gala has raised nearly $19 million since 2002, <ref>[http://www.wwd.com/eye/parties/loral-and-ovarian-cancer-research-fund-host-legends-gala-5350457 "L'Oreal Paris Legends Gala Raises $2.3M,"] Women's Wear Daily, November 3, 2011</ref> and typically honors individuals from a range of industries. Past honorees have included [[Sherry Lansing]], [[Trudie Styler]], [[Terry Lundgren]], and Kathy Black.
The OCRFA Ovarian Cancer National Conference provides expert sessions on topics such as clinical trials, early detection, and treatment through various forums and lectures from renowned clinicians and researchers. Survivors and their families also can attend workshops and events on issues about living with ovarian cancer.


=== Woman to Woman Program ===
A signature "Stand Up for Madeline and OCRF" comedy event is held annually in tribute to [[Madeline Kahn]], who passed away from ovarian cancer. Her husband, John W. Hansbury, joined the Board of Directors of Ovarian Cancer Research Fund and created the comedy event<ref>[http://www.ocrf.org/news/latest-news/standing-up-for-madeline-2 Standing up for Madeline: Ovarian Cancer Research Fund]</ref> which is held at [[Carolines on Broadway]].
In 2011 the former OCRF began a national expansion of Woman to Woman, a local program originating at [[Mount Sinai Hospital (Manhattan)|Mount Sinai Hospital]].<ref>{{Cite web|url=https://www.mountsinai.org/care/obgyn/services/support-programs|title=OBGYN Support Programs {{!}} Mount Sinai - New York|website=Mount Sinai Health System|language=en-US|access-date=2018-12-06}}</ref> This program pairs volunteer gynecologic cancer survivors with women recently diagnosed and actively going through treatment, and offers information and support for caregivers.<ref>{{Cite web|url=http://awomanshealth.com/the-ocrf-woman-to-woman-program/|title=The OCRF Woman to Woman Program}}</ref> Woman to Woman program sites are selected through an application process. OCRFA gives each selected institution a one-year, $50,000 grant to cover the cost of a part-time program coordinator, with remaining funds allotted to a patient fund. Newly established Woman to Woman programs are expected to become self-funding after the first year.<ref>{{Cite web|url=https://www.thegrantplantnm.com/grant-detail/ovarian-cancer-research-fund-alliance-woman-to-woman-grant-program/|title=Ovarian Cancer Research Fund Alliance: Woman to Woman Grant Program : The Grant Plant, Inc. New Mexico|website=www.thegrantplantnm.com|date=28 April 2017|access-date=2018-12-06}}</ref>


=== Community Partner Program ===
In 2012, Ovarian Cycle, formerly an independent 501(c)3 nonprofit, became a signature event series of OCRF.<ref>[http://www.ocrf.org/wp-content/uploads/ocrfovariancyclepressrelease.pdf Ovarian Cancer Research Fund Announces National Expansion With Ovarian Cycle: Ovarian Cancer Research Fund]</ref> Ovarian Cycle had previously held indoor cycling events to raise money for ovarian cancer research. OCRF was the national charity recipient of a portion of their annual fundraising.
OCRFA works with not-for-profit organizations across the United States to share information and put forth a unified national voice for the ovarian cancer movement. This program was established by the former Ovarian Cancer National Alliance and was formerly called the Partner Member Program.<ref>{{Cite web|url=http://www.colo-ovariancancer.org/who_we_are/partner-page.html|title=Partners of Colorado Ovarian Cancer Alliance}}</ref>

== Events ==

The first OCRF ovarian cancer awareness broadcast and print public service announcements<ref name="Inc.2006">{{cite book|author=Rodale, Inc.|title=Women's Health|url=https://books.google.com/books?id=J8YDAAAAMBAJ&pg=PA49|date=April 2006|publisher=Rodale, Inc.|pages=49–|issn=0884-7355}}</ref> were created in partnership with [[L'Oréal]] and featured [[Andie MacDowell]].<ref>[http://www.ispot.tv/ad/7YpI/the-ovarian-cancer-research-fund-featuring-andie-macdowell iSpot.tv], Ovarian Cancer Research Fund TV Spot Featuring Andie MacDowell</ref> Since then, OCRA has been included in print<ref>"The Big O," Prevention, September 2011, Catherine Winters, p.96-105</ref> and online publications, including books,<ref name="Cuomo2012">{{cite book|author=Margaret I. Cuomo|title=A World Without Cancer: The Making of a New Cure and the Real Promise of Prevention|url=https://books.google.com/books?id=PfI7HkBibUsC&pg=PA283|date=12 October 2012|publisher=Rodale|isbn=978-1-60961-886-5|pages=283–}}</ref> national and international magazines and local newspapers, as a resource for ovarian cancer information.

Contributions to public discourse on ovarian cancer in are done through various forums, including Letters to the Editor in ''[[The New York Times]]''.<ref>[https://www.nytimes.com/2012/09/21/opinion/doubt-about-ovarian-cancer-screening.html?_r=1& "Doubt About Ovarian Cancer Screening,"] The New York Times, The Opinion Pages, September 20, 2012</ref><ref>[https://www.nytimes.com/2013/03/21/opinion/ovarian-cancer.html?_r=0 "Ovarian Cancer,"] The New York Times, The Opinion Pages, March 20, 2013</ref>

The organization has four signature events. The earliest established, called Super Saturday, is an annual fundraiser held in Water Mill, New York. Super Saturday was founded in 1998 by fashion designer Donna Karan, and late OCRF President and Editor-In-Chief of ''Harper's Bazaar'', Liz Tilberis. It is dubbed the "Rolls-Royce of garage sales"<ref>[https://www.nytimes.com/2002/08/04/style/on-the-meadow-rolls-royce-of-garage-sales.html?n=Top%2fReference%2fTimes%20Topics%2fPeople%2fC%2fCunningham%2c%20Bill "On The Meadow: Rolls-Royce of Garage Sales,"] The New York Times, Style, August 4, 2002</ref> by The New York Times, and has been hosted by [[Kelly Ripa]] and sponsored by Donna Karan, QVC and [[InStyle]]. Super Saturday includes a "garage sale" of new designer products, a live on-site QVC broadcast, a children's carnival, and other activities. In 2013, Super Saturday raised $3.5 million<ref>[http://www.ocrf.org/wp-content/uploads/WallStreetJournal-7.30.13.pdf "Shopping for a Cause, a Hamptons Tradition,"] The Wall Street Journal, Heard & Scene, July 30, 2013</ref> for Ovarian Cancer Research Fund.

The Legends Gala was sponsored for several years by L'Oréal Paris, and is held every other year. A 2011 Gala was held at the [[American Museum of Natural History]], and was hosted by [[Julianna Margulies]]. The gala has raised nearly $19 million since 2002,<ref>[http://www.wwd.com/eye/parties/loral-and-ovarian-cancer-research-fund-host-legends-gala-5350457 "L'Oreal Paris Legends Gala Raises $2.3M,"] Women's Wear Daily, November 3, 2011</ref> and typically honors individuals from a range of industries. Past honorees have included [[Sherry Lansing]], [[Trudie Styler]], [[Terry Lundgren]], and Kathy Black.

A signature "Stand Up for Madeline and OCRA" comedy event is held annually in tribute to [[Madeline Kahn]], who died from ovarian cancer. Her husband, John W. Hansbury, joined the Board of Directors of Ovarian Cancer Research Fund and created the comedy event<ref>[http://www.ocrf.org/news/latest-news/standing-up-for-madeline-2 Standing up for Madeline: Ovarian Cancer Research Fund]</ref> which is held at [[Carolines on Broadway]].

In 2012, Ovarian Cycle, formerly an independent 501(c)(3) nonprofit, became a signature event series of the organization.<ref>[http://www.ocrf.org/wp-content/uploads/ocrfovariancyclepressrelease.pdf Ovarian Cancer Research Fund Announces National Expansion With Ovarian Cycle: Ovarian Cancer Research Fund]</ref> Ovarian Cycle had previously held indoor cycling events to raise money for ovarian cancer research with the organization a national charity recipient of a portion of Ovarian Cycle's annual fundraising.


== Partners ==
== Partners ==


Through corporate sponsorships and cause-marketing campaigns, OCRF has received support from a variety of companies. Some sponsors have included QVC, L’Oreal Paris, [[Electrolux]], [[Alex and Ani]], and [[LeSportsac]].
Through corporate sponsorships and cause-marketing campaigns, the organization has received support from a variety of companies. Some sponsors have included QVC, L'Oréal Paris, [[Electrolux]], [[Alex and Ani]], and [[LeSportsac]].


== Accountability ==
== Accountability ==


Ovarian Cancer Research Fund has a four-star rating from independent charity evaluator, Charity Navigator, and ranks among the top 10% of all four-star rated charities.<ref>[http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=8037 Charity Navigator: Ovarian Cancer Research Fund]</ref> OCRF is also a Better Business Bureau Accredited Charity that meets the BBB Wise Giving Alliance accreditation standards for charity accountability, and has had their seal since 2010.<ref>[http://www.bbb.org/charity-reviews/national/health/ovarian-cancer-research-fund-in-new-york-ny-3799 Better Business Bureau: Ovarian Cancer Research Fund]</ref> Ovarian Cancer Research Fund is a Silver-level GuideStar Exchange participant.<ref>[http://www.guidestar.org/organizations/13-3806788/ovarian-cancer-research-fund.aspx Guidestar: Ovarian Cancer Research Fund]</ref> In October 2012, SELF magazine ranked OCRF as one of the three best cancer charities.<ref>[http://www.self.com/health/2012/10/cancer-charities-rankings-slideshow#slide=2 "Give Back and Make it Count"], SELF Magazine, October 2012, Marjorie Korn, p.130</ref>
Ovarian Cancer Research Alliance has a four-star rating from independent charity evaluator [[Charity Navigator]], and ranks among the top 10% of all four-star rated charities.<ref>[http://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=8037 Charity Navigator: Ovarian Cancer Research Fund]</ref> OCRA is also a Better Business Bureau Accredited Charity that meets the BBB Wise Giving Alliance accreditation standards for charity accountability, and has had their seal since 2010.<ref>[http://www.bbb.org/charity-reviews/national/health/ovarian-cancer-research-fund-in-new-york-ny-3799 Better Business Bureau: Ovarian Cancer Research Fund]</ref> Ovarian Cancer Research Alliance is a Silver-level GuideStar Exchange participant.<ref>[http://www.guidestar.org/organizations/13-3806788/ovarian-cancer-research-fund.aspx Guidestar: Ovarian Cancer Research Fund]</ref> In October 2012, ''[[Self (magazine)|Self]]'' magazine ranked then-OCRF as one of the three best cancer charities.<ref>[http://www.self.com/health/2012/10/cancer-charities-rankings-slideshow#slide=2 "Give Back and Make it Count"], SELF Magazine, October 2012, Marjorie Korn, p.130</ref>

== References ==
== References ==


Line 74: Line 93:


== External links ==
== External links ==
*
* [https://www.hourdetroit.com/community/ovarian-cancer-the-stealthy-specter/ "Ovarian Cancer, The Stealthy Specter," Hour Detroit, September 2012, Monica Mercer]
* [https://jewishweek.timesofisrael.com/confronting-the-silent-killer/ "Confronting the Silent Killer," The Jewish Week, October 10, 2012, Elecia Brown]
* [https://books.google.com/books/about/No_Time_to_Die.html?id=7GPx2pkP4dQC No Time to Die: Living with Ovarian Cancer, Liz Tilberis, Harper Collins, 1999]

{{Authority control}}


[[Category:Ovarian cancer]]
* [http://awomanshealth.com/ovarian-cancer-research-fund/ A Woman's Health, Ovarian Cancer Research Fund]
[[Category:Cancer charities in the United States]]
* [http://www.hourdetroit.com/Hour-Detroit/September-2012/The-Stealthy-Specter/ "Ovarian Cancer, The Stealthy Specter," Hour Detroit, September 2012, Monica Mercer]
[[Category:Charities based in New York City]]
* [http://www.thejewishweek.com/features/all-she-wrote/confronting-silent-killer "Confronting the Silent Killer," The Jewish Week, October 10, 2012, Elecia Brown]
[[Category:Medical and health organizations based in New York (state)]]
* [http://www.research-europe.com/index.php/2013/08/audra-moran-ceo-and-john-w-hansbury-board-co-president-ovarian-cancer-research-fund/ "Audra Moran, CEO, and John W Hansbury, Board Co-President, Ovarian Cancer Research Fund," International Innovation, August 28, 2013]
* [http://books.google.com/books/about/No_Time_to_Die.html?id=7GPx2pkP4dQC No Time to Die: Living with Ovarian Cancer, Liz Tilberis, Harper Collins, 1999]

Latest revision as of 16:07, 31 December 2023

"OCRA" redirects here. For the font, see OCR-A.
Ovarian Cancer Research Alliance
Founded1994
FounderSol Schreiber
TypeNonprofit Organization / NGO
FocusOvarian cancer research
Location
  • New York, New York
ServicesCharitable services
Key people
Audra Moran, President & CEO
Robin S. Cohen, Vice President
John W. Hansbury, Esq., Chair
Tom Liebman, Director
Dana L. Mark, Esq., Secretary
Matthew Neal Miller, Director
Mark Tessar, CPA, CIA, Treasurer
Websiteocrahope.org
Formerly called
Ann Schreiber Ovarian Cancer Research Fund, Ovarian Cancer Research Fund, Ovarian Cancer National Alliance, Ovarian Cancer Research Fund Alliance

Ovarian Cancer Research Alliance (OCRA) is a not-for-profit organization focused on ovarian cancer research, advocacy and patient support.[1] The organization was formed in January 2016 when the former not-for-profit organization Ovarian Cancer Research Fund, which focused primarily on ovarian cancer research, combined with Ovarian Cancer National Alliance, which focused primarily on ovarian cancer advocacy and support programs, to form one organization.[1]

History[edit]

The former Ovarian Cancer Research Fund (OCRF) was founded in December 1994, as the Ann Schreiber Ovarian Cancer Research Fund by Sol Schreiber in memory of his wife, Ann, who died of ovarian cancer. The organization later became the Ovarian Cancer Research Fund. In 1997, Liz Tilberis, editor-in-chief of Harper's Bazaar and also battling ovarian cancer,[2] became the organization's first president. Tilberis, with help from Donna Karan, started the organization's signature fundraiser, Super Saturday, hosting the first one in 1998 in the Hamptons in New York. Prior to becoming Ovarian Cancer Research Fund Alliance, Ovarian Cancer Research Fund was the oldest and largest charity in the United States funding ovarian cancer research.[3]

The former Ovarian Cancer National Alliance (OCNA) was founded in 1997 by the leaders of several ovarian cancer organizations.[4] Prior to becoming the eventual merge of the two organizations, OCNA was a leading ovarian cancer organization in the United States focusing on federal advocacy, awareness and patient support programs.[5]

Research[edit]

As of December 2018, since inception of the original organization, OCRA has awarded 297 research grants to scientists at 73 medical institutions, totaling over $80 million.[6]

The majority of ovarian cancer research funding in the United States comes from two government sources—the National Cancer Institute[7] and United States Department of Defense.[8] OCRA is the largest non-governmental funding source of ovarian cancer research. OCRA research grants are approved by a committee of gynecologic oncologists and scientists treating or studying ovarian cancer.[9]

Grant-making programs[edit]

Through grant-making programs, OCRA funds scientific research at cancer centers and academic research centers in the U.S. The first grants were awarded in 1998. OCRFA offers three research grants:

  • Collaborative Research Development Grant: OCRFA's largest grant ($900,000 over three years) is for senior investigators with established research careers, and provides funding for large ovarian cancer research projects that involve several investigators within one institution or collaborations between groups in multiple institutions.[10] ($300,000 per year for three years)
  • Liz Tilberis Early Career Award: This award is for junior faculty, and supports a time commitment to research and academic endeavors in ovarian cancer.[11] ($150,000 per year for three years).
  • Ann and Sol Schreiber Mentored Investigator Award: This award was created in 2003, and funds clinical fellows or post-doctoral fellows working under the supervision of a mentor who is considered a leader in the field of ovarian cancer research.[12] ($75,000 over one or two years)
  • Rosalind Franklin Prize for Excellence in Ovarian Cancer Research: This annual award was introduced in 2005 in honour of Rosalind Franklin, discoverer of key chemical properties for the correct description of the structure of DNA and died of ovarian cancer in 1958.[13]

OCRA selects research projects through a peer-review process, conducted once each year by a panel of advisors called the Scientific Advisory Committee, which is chaired by Jeff Boyd of the Florida International University and Miami Cancer Institute.[14]

Less than 10% of applicants are awarded grants. Institutions that have received the most grants include University of Texas MD Anderson Cancer Center, University of Pennsylvania, Fox Chase Cancer Center, Duke University, and Brigham and Women's Hospital.

OCRA presents an educational webinar series featuring speakers on topics in ovarian cancer research and addresses clinical trial enrollment with an ovarian cancer clinical trial finder on its website.[15]

Advocacy[edit]

OCRA works with federal policy makers, including the President, Congress, and federal agencies like the Food and Drug Administration (FDA) and the Centers for Medicare and Medicaid Services (CMS). OCRA commits its resources to be a voice for ovarian cancer survivors and to significantly reduce the number of deaths from this deadly disease by advocating at the federal level[16] for:

  • Adequate and sustained funding for ovarian cancer research and awareness programs.
  • Legislation that improves quality of life and access to care for cancer patients.[17]

Advocacy Day[edit]

Advocacy Day takes place on Capitol Hill. Ovarian cancer survivors meet one-on-one with elected officials to share their personal stories as well as ask for support on a number of federal efforts aimed at sustaining or increasing funding for federal ovarian cancer research, awareness and support.[18]

Support[edit]

OCRA's support programs focus on helping women and their families before, during and beyond diagnosis.

Survivors Teaching Students: Saving Women's Lives[edit]

Survivors Teaching Students: Saving Women's Lives aims to educate future healthcare professionals—physicians, nurse practitioners, nurses and physician assistants—to increase their understanding of ovarian cancer symptoms and risk factors so that they will be able to diagnose the disease when it is in its earlier, most treatable stages.[19]

Ovarian Cancer National Conference[edit]

The OCRFA Ovarian Cancer National Conference provides expert sessions on topics such as clinical trials, early detection, and treatment through various forums and lectures from renowned clinicians and researchers. Survivors and their families also can attend workshops and events on issues about living with ovarian cancer.

Woman to Woman Program[edit]

In 2011 the former OCRF began a national expansion of Woman to Woman, a local program originating at Mount Sinai Hospital.[20] This program pairs volunteer gynecologic cancer survivors with women recently diagnosed and actively going through treatment, and offers information and support for caregivers.[21] Woman to Woman program sites are selected through an application process. OCRFA gives each selected institution a one-year, $50,000 grant to cover the cost of a part-time program coordinator, with remaining funds allotted to a patient fund. Newly established Woman to Woman programs are expected to become self-funding after the first year.[22]

Community Partner Program[edit]

OCRFA works with not-for-profit organizations across the United States to share information and put forth a unified national voice for the ovarian cancer movement. This program was established by the former Ovarian Cancer National Alliance and was formerly called the Partner Member Program.[23]

Events[edit]

The first OCRF ovarian cancer awareness broadcast and print public service announcements[24] were created in partnership with L'Oréal and featured Andie MacDowell.[25] Since then, OCRA has been included in print[26] and online publications, including books,[27] national and international magazines and local newspapers, as a resource for ovarian cancer information.

Contributions to public discourse on ovarian cancer in are done through various forums, including Letters to the Editor in The New York Times.[28][29]

The organization has four signature events. The earliest established, called Super Saturday, is an annual fundraiser held in Water Mill, New York. Super Saturday was founded in 1998 by fashion designer Donna Karan, and late OCRF President and Editor-In-Chief of Harper's Bazaar, Liz Tilberis. It is dubbed the "Rolls-Royce of garage sales"[30] by The New York Times, and has been hosted by Kelly Ripa and sponsored by Donna Karan, QVC and InStyle. Super Saturday includes a "garage sale" of new designer products, a live on-site QVC broadcast, a children's carnival, and other activities. In 2013, Super Saturday raised $3.5 million[31] for Ovarian Cancer Research Fund.

The Legends Gala was sponsored for several years by L'Oréal Paris, and is held every other year. A 2011 Gala was held at the American Museum of Natural History, and was hosted by Julianna Margulies. The gala has raised nearly $19 million since 2002,[32] and typically honors individuals from a range of industries. Past honorees have included Sherry Lansing, Trudie Styler, Terry Lundgren, and Kathy Black.

A signature "Stand Up for Madeline and OCRA" comedy event is held annually in tribute to Madeline Kahn, who died from ovarian cancer. Her husband, John W. Hansbury, joined the Board of Directors of Ovarian Cancer Research Fund and created the comedy event[33] which is held at Carolines on Broadway.

In 2012, Ovarian Cycle, formerly an independent 501(c)(3) nonprofit, became a signature event series of the organization.[34] Ovarian Cycle had previously held indoor cycling events to raise money for ovarian cancer research with the organization a national charity recipient of a portion of Ovarian Cycle's annual fundraising.

Partners[edit]

Through corporate sponsorships and cause-marketing campaigns, the organization has received support from a variety of companies. Some sponsors have included QVC, L'Oréal Paris, Electrolux, Alex and Ani, and LeSportsac.

Accountability[edit]

Ovarian Cancer Research Alliance has a four-star rating from independent charity evaluator Charity Navigator, and ranks among the top 10% of all four-star rated charities.[35] OCRA is also a Better Business Bureau Accredited Charity that meets the BBB Wise Giving Alliance accreditation standards for charity accountability, and has had their seal since 2010.[36] Ovarian Cancer Research Alliance is a Silver-level GuideStar Exchange participant.[37] In October 2012, Self magazine ranked then-OCRF as one of the three best cancer charities.[38]

References[edit]

  1. ^ a b "Ovarian Cancer Research Alliance - GuideStar Profile". www.guidestar.org. Retrieved 2018-12-06.
  2. ^ Lennon, Christine (2009-06-03). "Ovarian Cancer: Fighting for a Cure". Harper's BAZAAR. Retrieved 2018-12-06.
  3. ^ "New Stand Up To Cancer-OCRF-OCNA-NOCC Ovarian Cancer Dream Team announced". EurekAlert!. Retrieved 2018-12-06.
  4. ^ "Ovarian Cancer National Alliance". Cancer Connect. Retrieved 2018-12-06.
  5. ^ "Resources - Susan Marie Rupp Foundation". 20 July 2013.
  6. ^ "Good News at Fred Hutch". 25 January 2018.
  7. ^ "Research Funding". National Cancer Institute. 2018-02-16. Retrieved 2018-12-06.
  8. ^ "Ovarian Cancer Research Program, Congressionally Directed Medical Research Programs". cdmrp.army.mil. Retrieved 2018-12-06.
  9. ^ "Charity Navigator - Rating for Ovarian Cancer Research Fund Alliance". Charity Navigator. Retrieved 2018-12-06.
  10. ^ "Collaborative Research Development Grant - Ovarian Cancer Research Fund Alliance | Research | Weill Cornell Medicine".
  11. ^ "Van Andel Research Institute's Hui Shen receives ovarian cancer research award". VAI. 2015-11-18. Retrieved 2018-12-06.
  12. ^ admin. "New Researcher at The Hormel Institute Awarded Ovarian Cancer Research Grant". The Hormel Institute. Retrieved 2018-12-06.
  13. ^ "OCRA National Conference Awards & Prizes". OCRA. Retrieved 2021-05-17.
  14. ^ "Miami Cancer Institute Names Jeff Boyd, PH.D., Director of Translational Research and Genomic Medicine". 14 January 2016.
  15. ^ "Emergingmed". app.emergingmed.com. Retrieved 2018-12-06.
  16. ^ "Michigan Ovarian Cancer Alliance Homepage". www.mioca.org. Retrieved 2018-12-06.
  17. ^ "Providing Education | MOCA". mnovarian.org. Retrieved 2018-12-06.
  18. ^ "Ovarian Cancer Alliance of Oregon & SW Washington - Advocacy Day 2015 in Washington DC". www.ovariancancerosw.org. Retrieved 2018-12-06.
  19. ^ "Survivors Teaching Students® | MOCA". mnovarian.org. Retrieved 2018-12-06.
  20. ^ "OBGYN Support Programs | Mount Sinai - New York". Mount Sinai Health System. Retrieved 2018-12-06.
  21. ^ "The OCRF Woman to Woman Program".
  22. ^ "Ovarian Cancer Research Fund Alliance: Woman to Woman Grant Program : The Grant Plant, Inc. New Mexico". www.thegrantplantnm.com. 28 April 2017. Retrieved 2018-12-06.
  23. ^ "Partners of Colorado Ovarian Cancer Alliance".
  24. ^ Rodale, Inc. (April 2006). Women's Health. Rodale, Inc. pp. 49–. ISSN 0884-7355.
  25. ^ iSpot.tv, Ovarian Cancer Research Fund TV Spot Featuring Andie MacDowell
  26. ^ "The Big O," Prevention, September 2011, Catherine Winters, p.96-105
  27. ^ Margaret I. Cuomo (12 October 2012). A World Without Cancer: The Making of a New Cure and the Real Promise of Prevention. Rodale. pp. 283–. ISBN 978-1-60961-886-5.
  28. ^ "Doubt About Ovarian Cancer Screening," The New York Times, The Opinion Pages, September 20, 2012
  29. ^ "Ovarian Cancer," The New York Times, The Opinion Pages, March 20, 2013
  30. ^ "On The Meadow: Rolls-Royce of Garage Sales," The New York Times, Style, August 4, 2002
  31. ^ "Shopping for a Cause, a Hamptons Tradition," The Wall Street Journal, Heard & Scene, July 30, 2013
  32. ^ "L'Oreal Paris Legends Gala Raises $2.3M," Women's Wear Daily, November 3, 2011
  33. ^ Standing up for Madeline: Ovarian Cancer Research Fund
  34. ^ Ovarian Cancer Research Fund Announces National Expansion With Ovarian Cycle: Ovarian Cancer Research Fund
  35. ^ Charity Navigator: Ovarian Cancer Research Fund
  36. ^ Better Business Bureau: Ovarian Cancer Research Fund
  37. ^ Guidestar: Ovarian Cancer Research Fund
  38. ^ "Give Back and Make it Count", SELF Magazine, October 2012, Marjorie Korn, p.130

External links[edit]

Retrieved from "https://en.wikipedia.org/w/index.php?title=Ovarian_Cancer_Research_Alliance&oldid=1192834588"